Tag Archives: Brain Aneurysm

Shackles

joan-of-arc-aFor those that haven’t read my post “Naked in Front of the Crowd,” go read it! No, it’s fine. Here are the Cliff Notes. A couple of months ago, I was diagnosed  with a small brain aneurysm.  I’ve had mixed feelings about this from the beginning.  At first, I felt so guilty that Nolan most likely got this from me. Somebody pissed in my gene pool and he paid the ultimate price. It’s obviously ridiculous to feel guilty about that. I carry no more responsibility for his developing an aneurysm than I have responsibility for his getting my ears or my mouth. Genetics are bizarre. So, I got over that. Mostly.

Second stage of coping: I was relieved.  How weird is that? To me, this meant that I wouldn’t have to live another 40+ years without Nolan. There was a back door out of this life! There was a quick escape! It was out of my hands and maybe part of the plan! I was ok with that. I know, I know. My other kids need me and yadda yadda yadda. Hey, Grief is messy, ugly, and doesn’t much care about anyone else. It just is.

Every time I’ve had a migraine since this diagnosis, I did get a little nervous. I immediately began formulating a plan of what to do with Li’l N just in case. I kept the phone near me, just in case. Not the actions of someone who was waiting to die. That showed me that I really didn’t want to leave this world just yet as much as I do want to leave this world right now. Does that makes sense? Don’t feel bad. It doesn’t make sense to me either. Grief is full of strange dichotomies. {shrug}

I met with briefly with Li’l N’s neurosurgeon who was kind enough to take a quick look at my scans. He agreed with the first diagnosis. Considering he’s a pediatric guy, it was suggested I see another neurologist who works with adults. That brings us up to today.

I met with a neurosurgeon who is at the very top of his field. What did he have to say? He was “underwhelmed” with my scans. Wait, what? In this case, he assured me, that is a good thing. While he can see where the original diagnosis came from, he is pretty confident that it’s nothing big enough to require treatment or anything more than repeat scans as the years go by. Great news! Everyone is so happy and relieved. Awesome! Woo Hoo! Right?

Not me. I felt like I had 100lb weights strapped to my feet. I felt like I had a 1,000lb weight sitting on my chest. Relief isn’t the word for what I felt.  I felt stuck. Trapped. Hopeless. Shackled to this life that I no longer want. That was my back door. Now it’s locked. That was my “easy out.” That was my escape. Now what?

It’s taboo to say things like that. We’re not supposed to want to die. When you lose a child, you’re supposed to hold on for your other kids. It’s what everyone tells you. Somehow it’s just expected that you would want to. Let me tell you, that’s not the case. It’s not about how much you love your other children. Lord knows, I love them more than anything else in this world! I’m only breathing today because of them. It’s not about that. It’s not even about love. It’s about loss. Grief is selfish. It blankets everything else completely. Grief doesn’t care that the other kids are hurting too. It can see that, but it can’t touch it. Grief doesn’t care that the other parent is broken too. Grief has eyes and a mind for only one person. The child that isn’t here. Grief cries out for them with a screeching holler that leaves no room for the sound of other children crying. It’s horrible to the other children who will forever be The Other Children.

You may think this makes me a bad mother. Maybe it does. I don’t know. I can’t make any apologies for these feelings. I didn’t ask for them. They came when Nolan left. Experience has shown me that feelings are transient. Hopefully these feelings will be as well. I think they will pass in time because of the deep love I have for The Other Children. In the meantime, I go through the motions. I try to check in with them. I hug them. I tell them I love them and how proud I am of them. I tell them I’m here if they need me. The harsh reality is that I’m not here as I should be or want to be. I’m half out of this world. I’m straddling the abyss. The back door is locked. I have no easy out. I’m stuck. Shackled. Here. While Nolan is There.

 

4 Months

hourglassIt’s been 4 months Since. 122 days, 17 hours, and approximately 37 minutes as of this writing. Since.

Each day moves me a little further away from that moment. I’m trying hard to not let my mind wander back to that time as often. It’s a bitter, uphill battle. I’ve learned to be vigilant with my thoughts. I have a note taped over the kitchen sink that reads “Control your thoughts and keep moving.” I need that reminder. If I don’t constantly stay in control of my thoughts, I’m back there at that moment reliving the next 4 days of torture. Sometimes I’m not strong enough to be vigilant. I’m blindfolded balancing on a tight rope covered in oil over a pool of razors in a bath of salt water. I slip quite often.

Everything has changed. My life is a shadow of the richness it once was. I am but a shell of the person I once was. My playful, free spirit is weighted down. My wings are broken. My spark is drenched. My face has creases that weren’t there Before. I’ve aged at least 5 years Since. There are lines around and bags under my eyes. My skin is dry and thin. It feels like my outsides are beginning to mirror my insides turning me into a dry husk of a human. I barely eat yet keep getting heavier. My body is trying desperately to wrap me in layers to protect my fragile Self. The weight simply pulls me down deeper under the water.

I don’t recognize the woman in the mirror. Her smile is forced and it never reaches her eyes. The sparkle is gone. This woman before me doesn’t laugh as easily or stand as tall. Well, as tall as her slight 5’3″ frame once did. This woman can’t really be me.

This woman before me has no tolerance for petty drama or bullsh*t. She is empty inside but with a well of compassion that knows no bounds. Her thinking is at once clear and confused. She can’t understand why people get so upset about minor things. A car breakdown, a grumpy child, a fight with a spouse. She sees beyond the annoyances to what really matters. She has no filter. She will share her perspective on your struggles with a simple, blunt statement, not meaning to sound crass but simply unable to mince words. She would trade your struggles for hers in a heartbeat.

The people surrounding this woman have changed. She has been abandoned by those she thought to count on in her weakest moments. She has been hurt deeply by those who profess to love her. Yet, she is surrounded by people who are True, Honest, Authentic, Pure. Brave. It takes a brave person to walk in her orbit. It’s a messy, ugly space filled with obstacles and fragmented remains of a shattered life that can destroy you.

This woman before me spends a lot of time on her knees now, in sorrow and in prayer. She knows she is too weak to stand alone. She is somehow strong enough to allow support.

Time is different now. It seems like a second and a lifetime. I still wait for Nolan to come say goodnight at the end of the day. Every night I wait. I still expect to see him getting ready for school in the morning. Every morning. I find myself thinking about where he should be in that moment. Every moment. It’s not true that time heals all wounds. Time passes, that’s all. It passes too quickly and too slowly. I can’t wait to get to the end so we can be together again. I want time to stand still so I can hold Li’l N just the way he is. Nothing makes sense. I will wait for Nolan for every second of every minute of every hour of every day for the rest of my life. I will miss him. I will ache for him. I will Love him.

It’s been 4 months. 122 days, 17 hours, and approximately 37 minutes as of this writing. And yet, all that has passed is the blink of an eye.

 

Angels on the Field

10507019_10152393416675780_8248734576577210507_oDH and I were lucky enough to have dinner before the Big Game with Taylor Darveau’s parents. (See my last post for the backstory.) I will admit I was nervous to meet them. In fact, I said to a friend of mine that I didn’t know what to say to them. Her response as she had a fit of giggles –  “I’m not laughing with you. I’m laughing AT you.”  I know, it felt silly, hypocritical even. We are in the same horrific club. We both lost a child. How many people wouldn’t talk to me because they didn’t know what to say? I’m not immune to the irony.

As it turns out, I had zero reason to be nervous. They are such warm, caring, open, and forgiving people. They traveled a much harsher road than we have and yet conduct themselves with a grace and a determination that speaks volumes for the depth of their love for Taylor. I feel honored and blessed to count them among our Friends. The parallels in our lives and in our childrens’ lives is uncanny. I firmly believe that Nolan and Taylor have their hands in all of this. As much as both families would give anything to have them back, it’s comforting to know that they are together and working hard to surround all of us with their loving guidance.

How did the Big Game go? The Huskies did it, and not alone either. I have no doubt that Nolan was there, and this photo simply proves it.

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The emotions that poured forth upon the win surprised me. It hit me hard and the tears just flowed. Luckily I was surrounded by loving support and they helped me stand. I wasn’t the only one. This has been such an emotional season for all of us. I went onto the field to hug some of Nolan’s best friends on the team and could have held onto them for hours. We cried together in joy and in sorrow. Thinking about it now still brings tears to my eyes. I know Nolan is so very proud.

Nolan has been with his Brothers every step of the way this season. We move on to the State Championship game next Saturday in Portland. Including exhibition games and scrimmages, next Saturday’s will be the Huskies’ 13th game. Do you think that’s a coincidence? Neither do I.

You can catch the recap here (remember to open in new tab!):

http://wabi.tv/2014/11/15/mci-battles-back-best-bucksport-win-class-d-eastern-maine-crown/

Learn more about Taylor Darveau and the T.A.Y.L.O.R. Foundation at:

http://www.taylorfoundation.com/

The Big Game is more than a Game

 

1507760_896734047028178_7975437336775227726_nFootball has always been big here in this little town of Pittsfield, and this season it’s become even bigger. Our Huskies are about to face their Championship Game tomorrow night with an undefeated record behind them. To the Team, to the Community, to all of Us, it’s about more than the game.

Nolan decided to switch from Soccer to Football at the end of his 8th grade year. He had begun weight training with the Huskies and was drawn in by their camaraderie. He knew these boys were more than teammates, more than friends. They were brothers. They were so welcoming and inviting to Nolan. He wasn’t expecting that. He was anticipating the usual antics and hassling towards Freshmen. Those boys were nothing like that. They connected with Nolan and he fit right in from the beginning.

It broke something in all of us when Nolan died before he ever got to play on the field in an actual game. His death also created something. Nolan’s passing tightened the bonds of the Huskies bringing rise to their passion, perseverance, and endurance. Nolan’s passing brought them a mission. Their mission was to play this season for their fallen brother. Their mission was to play harder and fiercer for Nolan and to make Nolan proud. Let me tell you, they have done that and more.

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This story has captured everyone’s attention and touched our Community. Below I’ve put 2 links for a news story covering Nolan and the Huskies this season. Please take a few minutes to watch. It’s very touching.

**open link in new tab so you don’t lose me!**

http://wabi.tv/2014/11/03/nolan-berthelette-still-part-mci-football-program/

http://wabi.tv/2014/11/04/berthelette-continues-inspire-mci-football-part-2/

Are you still with me? The story gets better.  Meet our opponents in this Championship Game. The Bucksport Bucks, and they are no strangers to loss. They lost someone very special to them as well, Taylor Darveau. Taylor was a cheerleader for Bucksport and was killed last year in a Distracted Driving accident. Please take another minute to read more about this amazing connection.

http://pressbox.bangordailynews.com/2014/11/09/home/bucksport-mci-cope-with-tragedy-while-reaching-ltc-final/#.VF_JybbH-FI.facebook

Now we’re down to it. Two teams playing for their fallen mates. You couldn’t make this up. Well, maybe Hollywood could, but you and I couldn’t. It’s an incredible showdown in the making. These kids on both teams are an example of perseverance. They are an example of kinship. They are an example to all of us that there is more than a Game at hand. It doesn’t really matter who wins. Of course we’d love to see the Huskies go all the way. There’s a bigger picture here. All of these kids have lost some of their innocence. They know all too well that bad things happen to good kids. They’ve shown us how to stay strong and keep going. They’ve shown us how to hold each other up when we fall. I usually roll my eyes at the saying, but I’m using it here with all sincerity. No matter who gets the trophies at the end of the night, all these kids have won so much more than a Game.

Shoulda, Woulda, Coulda

carouselI learned today that Nolan’s twitches were, in fact, a symptom of his aneurysm. He had this blinking twitch and this weird moving-his-hairline twitch. That one was pretty strange to see. He could literally move just his hair on his scalp. I’ve never seen anyone be able to do that before. I’d mentioned these behaviors to his Doctor on a number of occasions and was told they were just stress or anxiety responses. Like an idiot, I bought it. Ok, I’ll be kinder to myself. Not an idiot, like an ignorant fool. Try again? Like a passive parent. I can’t help feeling that as his Mother, I should have pursued the issue. I should have known.

Here it comes again. Shoulda, Woulda, Coulda. This is a bad road to go down, but right now it’s the only one I see. I should have seen something more was at play. I should have simply asked for a scan to be sure. I could have been more of an advocate for Nolan’s health. I should have known this deadly condition was lurking. I should have felt the danger! I could have saved him. We could have found out about this in time to maybe do something. I could have saved him if only I’d known. WHY didn’t I know? I’ve given that boy Reiki so many times. How did I not feel something amiss?

Where were my instincts? Where was my intuition? I can tell my kids are lying from the way they hold their bodies. I can tell they’re planning something sketchy by the tone of their voice. I can tell they’re not feeling well by a look in their eyes. How did I miss this? How could Nolan have been so close to death for so long and I didn’t see it? I noticed his twitches increasing in the months leading up to That Night. Why didn’t I pursue it? I believed it was simply stress and/or anxiety. It made sense. Nothing that bad could ever happen to one of my kids.

This is a slippery slope. It’s a carousel that doesn’t stop. People will tell you not to blame yourself, there’s nothing you could have done. People will say it was his Fate or he had something bigger to do. Maybe that’s true. It still spins me around and around and around. If I had just asked for a scan, Nolan might still be here today. He might be playing football this weekend. He might be downstairs right now playing drums. He might be driving me crazy with all of his plans. He might be standing right behind me asking my advice. He might have his hand on my shoulder right now. He might be saying “I love you, Mom” one more time.

I can’t trust myself anymore. I used to consider myself a good Mother. I took pride in being a Steward of these children. I thought I was so tuned in to them on all levels. How did this one get by  me? How could something so major slip my attention? What am I missing now? What if another of my children has something terribly wrong that I don’t see? I have lost faith in my instincts as a Mother, as a Sister, as a Friend, as a Wife. If I missed this, what else am I blind to?

I failed my son. I failed Nolan when he needed me most, and it cost him his life. How do I pick up and keep parenting knowing that? I’m not worthy of these children.

Hurtful Hurts and Truthful Truths

grief2Someone very close to me shut off their filters and let their feelings fly. Alcohol short-circuited those filters, but I think the emotions they shared, or more accurately hurled like burning daggers through my heart, were sincere. According to this person who I do love and respect, I am selfish and self-absorbed. I am weak because I take “F’ing DRUGS” to make it through the day. I am lazy and lay on the couch doing nothing all day. I am failing my youngest son and am not taking care of him. I am “ruining everything and destroying what is left of” my family. I hardly to go the cemetery, and the worst of it – I wasn’t there for Nolan when he left this world.

Want to let that sink in for a minute? Imagine trying desperately to get your head above water and managing the occasional gasp of breath, and then someone comes along who you thought would help you swim but they toss you a cement block instead and it drags you down into the depths of the darkness where you lose all sight of what’s up and down, and you lose all will to keep fighting for air. Welcome to my Now.

Before you condemn this person, consider their point of view. We all say things when we’re drinking that we wouldn’t and shouldn’t have said otherwise. I’m not sure it makes the statements untrue, just that they wouldn’t normally say them out loud. We are all entitled to our opinions and feelings. Just because they hurt, well, that just is. So without getting angry, what do you do? What do I do with all of that?

I’m doing everything I can think of to make it through each day yet each day is getting harder to make it through. I’m reading books about how to deal with Grief, meditating, reaching out to a support group, writing about my feelings, letting others hold me up when I’m too weak to stand. It’s supposed to get better, right? I find myself surrounded by people I wasn’t close to Before and yet I can’t imagine making it through this without them. I’m letting people in and telling Truthful Truths, as someone very dear to me calls the hard things to admit. I’m choosing to only spend time with people who help bring me to the Light, and I’m being authentic. What else can I do? Why is it getting harder?

Here’s my Truthful Truth for today. I am drowning, and I have no desire left to swim. Perhaps Dagger-Person is right and my family would be better off without me. No, I’m not suicidal, but every time I get a migraine, I’m almost hopeful the Aneurysm will rupture so the decision is taken out of my hands. I’m not supposed to talk like that. It makes people nervous. I would never do anything to force the issue, but there it is. I spend more hours a day crying and reliving that horrible experience over and over and over than I spend doing anything else collectively. I’m exhausted with fighting to make it through. There is no respite. There is no peace when Death steals your child and your Soul.

Dinnertime

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Last night we sat down to family dinner. I cooked two nights in a row. You probably don’t know what a big deal that is. I’m a good cook. Truly. I won’t give you salmonella, listeria, trichinosis, e. coli, or any other yucky food-type-poisoning. I have some dishes I make that DH says is better than Olive Garden even. (Hey, we set a mediocre bar here.) The problem is that I don’t like to cook very often. It’s not even that I don’t like to cook. It’s really that dinner comes at the most inconvenient time of day. We undoubtedly have some kid at some practice from 5:30 – 7 most nights. There’s homework and cranky time and getting ready for bed time. Who can combat all of that and still pull their family to the table together over something actually cooked and not defrosted? As Karma would have it, DH and Nolan always equate love with food. I couldn’t care less whether I even eat, and that’s not due to Grief. I’ve always been that way. I like food. I just don’t equate it with love.

Family dinner was always super important to Nolan. The most random and important topics were covered during family dinners. We talked about politics and world events and we talked about manscaping and horrors of waxing. We had fun. We argued and when things got heated, I’ve been known to throw lettuce at someone which would spark a food fight that was way more fun to have than to clean up. We had fun, even when stuff like this happened (yes, that’s a green bean in his nose):

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We had dinner as a family every night right up until the middle-school and teen years tore everyone in different directions. I managed to cook double on nights that I found time so that we always had leftovers for the next night. The worst offender of interrupting family dinner is baseball season. Really. Our player had to be down at the field by 4:00 for a 5:30 game, which didn’t end until around 7:30, at which time they had to clean up and have the Coach’s talk and yadda yadda yadda, and it’s 8pm before we even get home. I gave myself a pass, and Nolan was kind enough to give me a pass as well, on family dinner during baseball season. Hey, we were all at the field together anyway, right? Popcorn counts.

Nolan loves (loved, damn I hate past-tense verbs) eating as a family. He hated “make a plate” nights and would always ask me to at least sit with him while he ate. Even more, he hated (damn past-tense verb, I hate you!) “Whatever” nights. That’s when there was no food prepared and you had to find “Whatever” to eat. Sandwich? Cereal? Whatever.

I haven’t cooked more than a handful of meals for DH and Li’l N “Since.” I’m trying. I know Nolan would be so mad at the lack of thought given to dinners in this house “Since.” I want to honor him and still be as close to the old Me as “Before.” It’s not easy. Wednesday night, I made a lovely dinner and waited 30 minutes for DH and Li’l N to get to the table and ended up starting dinner alone.  Believe it or not, it was easier on me before they came to the table. Anyway, last night we all made it there at the same time and Li’l N decided he wasn’t eating what I made and was going to cook his own dinner. Whatever. It took him a little longer and I had to help a bit, but he finally made it to the table. I tried to eat but only tasted tears. We were 3 when we should still be 4. I remembered back to our younger days when we were 7 around the table. It made me profoundly sad. Li’l N now sits in Nolan’s seat, which he did “Before” on nights Nolan wasn’t home. That’s ok, but still. Nolan should be sitting there.

Li’l N was in a really crabby mood. I’ve noticed his fuse getting shorter lately, and I’m concerned he’s got some anger towards the world that might be coming on. DH did his darndest to pull Li’l N out and start a conversation. N was having none of it. I just happened to ask about a project he’s working on and had mentioned in passing, and the words came tumbling out. I hit on something he cared about. It was a great diffuser and a great conversation, and it made me think. We really haven’t been present like he deserves. We listen and hear “blah blah blah,” and N knows it. So I took a turn last night.

After dinner when he fake punched me, I didn’t scold him has I’m afraid I’ve done all too often “Since.” I just fake-punched him back. Then I fake-karate chopped him. Then I for-real picked him up, flipped him onto the couch and sat on him. Do you know who would do that? The old Me. The Me from “Before.” We went on to have the best fake-ninja fight that I totally fake-won. N laughed. Really laughed. Uninhibited, full-bodied laughs came. You know what else? So did I. For that little span of time, I was present with Li’l N, and he was present with me. We weren’t “Before” or “Since” but simply “Now.” It changed the energy of our house. It became a Home for just that little span of time. Yet, that was something big.

I can’t do it all the time. Not yet. I don’t know if the old Me will come back as “Before.” I doubt it because that old Me never knew this pain and didn’t have to carry this emptiness. Perhaps, in time, a new Me will have some of the same characteristics and tendencies as “Before.” For now, for just right “Now,” I strive to be in the moment with N. Giving him his Mom back is the best thing I can do to honor Nolan. That, and maybe cook more.

3 Months “Since”

Nolan suffered his Aneurysm on July 18, at around 10:10 pm. He lacked any brain function at the time the neurosurgeon first checked him at 2am on July 19. There has to be a second evaluation for brain function at least 4 hours later before a person can be pronounced “Deceased”. I remember dreading 6am, knowing they would check again. I was able to put the doctors off until the afternoon of July 19, when I watched everything they did during the 2nd neurological evaluation. It was horrible, but I’m glad I stayed with him during that exam. It left no doubt in my mind that Nolan was already gone. So, in the late afternoon on July 19, Nolan was pronounced officially “Brain Dead” (although they had some kinder, fluffier term they used it means the same ugly thing). Because we chose to honor Nolan’s passing by saving as many other lives as we could, Nolan was kept on life support while transplant teams and recipients were gathered and prepared. He was taken into the operating room the night of July 20, and was finally taken off of life support in the wee morning hours of July 21.

Which date do you go by? Is it by the “official” time/date stamp on some stupid “official” certificate? Do we call it when his heart was removed from his body? It’s horrible. It’s more than just 1 day to survive each month. We have to survive 4 separate anniversary dates each month. Which do we pick as our own “Official?”

We (DH, me, and Little N) consider Nolan’s passing to be on July 18, 2014 at approximately 10:15pm. That’s when his heart stopped beating. That’s when his breathing stopped. CPR was able to keep his blood oxygenated, but he didn’t maintain a steady heartbeat again until he was somewhere between Pittsfield and Bangor on the Life Flight helicopter. By that point, we all knew he was gone. I knew before the 2 ambulances even got to the house that he wasn’t coming back. I knew. I just knew.

Because of the length of this ordeal, we have 4 days every month where we remember some part of the trauma more strongly. The night he “went down,” the day of his “official” date, the night he went into surgery, and the day he was taken off life support. I think this makes it even harder.

On October 18, I decided that I simply couldn’t handle this 3-month mark. I opened the door wide and invited Denial right in. I asked Denial to bring as many friends as he could to help pretend the night away. What I literally did was this (taken from my personal Facebook page):

3 months. I can’t do it, so I’m not going to. Here it is, this is my Bat Signal going up, rallying the Troops. I’m going to have a Denial Party at my house tonight because that is way more fun than a Pity Party. We’re going to pretend that everything is ok and that we can survive this. We’re going to pretend that Grief isn’t swallowing us all, and we’re going to pretend laughter comes easily. We’ll throw some carnage on the grill and pretend we still like to eat. If you can handle that (and some cocktails) come on over, bring your kids, a snack or drink, and we’ll open the door wide for Denial. Just for tonight. We can get back to Grieving tomorrow.

It worked. So many of our friends showed up with food in hand and a hug in their hearts to help us make it through the night. 10:15pm came and went without my noticing. Our house was filled with laughter just like “Before.” I couldn’t have managed that night without everyone surrounding me and helping me stand. Seriously. I am so thankful for everyone who answered the Call. So what happened when everyone went home?

It turns out Denial is a fickle son-of-a-bitch. That “F-er” left with everyone else. He left me stranded and alone at 3am. I am so lucky that my dearest friend, my Soul Sister, was staying the night. I crawled into bed with her, sobbed and sobbed and sobbed. She simply gave me tons of Reiki and love until I fell asleep.

The following few days were also horrendous. It’s funny how things only occur to you in hindsight that should be so obvious. It really wasn’t until I began writing about Nolan’s timeline that it dawned on me. You’re probably one step ahead of me at this point. No duh the next few days were so hard! I didn’t consciously think about each day’s representation, but my body knew. My heart knew. Now I know, and maybe next month will make more sense when I spend 4 days in bed crying.

Naked in front of the crowd

 

stagefrightI thought after the last few days of heavy posts that I would put something a little lighter up today. Maybe share a laugh about Nolan. I do that. I get so far into the dark spaces that I have to let some light shine through. Sometimes I use humor or sarcasm to do that. Sometimes I use beer or wine. Don’t panic, I’m not an alcoholic, but come on. We all do something. Sometimes I use loud music. In this instance, though, I feel like doing so would be running scared. I feel a major breakdown coming on. Saturday will mark 3 months since the World went Dark. My plan was to share the details of Nolan’s passing on that day. I’m not sure if I can. Now I’m wondering if I even want to. We have been so open about everything in regards to Nolan that the last private moments we’ve kept are the graphic details of what actually happened that night. I know I said I promise I would tell you his story, but now I don’t know if I can keep that promise. I think I will just have to wait and see.

I have bared my Soul to you 3 days running now. You have reacted with nothing but compassion, support, and love. I owe you more than running scared. So I will stand before you, naked in front of this crowd, and tell you why I really started this blog.

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Another family who lost someone to a Brain Aneurysm was holding a fundraiser. They were selling sweatshirts that were designed to honor their Hero and raise awareness. My family worked closely with the Kat-Walk and Karo 5K for Maine Brain Aneurysm Awareness in September. https://www.facebook.com/KatWalkKaro5k. We brought them a team of over 130 people and raised over $7500 in funds to go towards their efforts. I bought the sweatshirt from another suffering family to support their efforts to raise awareness. And I felt like a hypocrite.

Here I was talking about what happened to Nolan and what happened to other families. Here I was going around talking about the signs and symptoms of brain aneurysms. I was touting statistics and treatment options…and I was keeping this secret. I’m carrying that same silent killer inside me.

I told my older kids about how I felt like a hypocrite and thought I should just come out with it. One of my daughters suggested starting a blog rather than just put it out on Facebook. It felt right. One of my daughters shared her concern about how people are still staring at her in public and she didn’t want even more attention. I tried to assure her that people aren’t staring like “OMG Do you see what she’s wearing???” I tried to assure her that people are looking at her in awe that she has the strength to be up and out and still moving. I think people look at all of us and wonder how a body can contain and carry such heavy Grief. Still, my amazingly strong daughter said she supported my sharing this personal journey.

So, Did you catch that? Typical of me, I slide something really important in and then move right along hoping you miss it. I can’t let you miss this. Here it is again. I’m carrying that same silent killer inside me. I, too, have been diagnosed with a brain aneurysm. There. It’s out there. Folks, this can happen to ANYONE.

I have seen a neurosurgeon who suggested I wait a year and see how it goes. That was good enough for me and my friend Denial. For some reason, I keep hearing a whisper between breaths that I shouldn’t wait and I should go for the further testing now. Denial doesn’t like that plan. It’s only in honor of Nolan that I am listening to this whisper. I wish I wish I wish I had known the symptoms and taken him to the doctor. I’ve been told time and again that there really was nothing that could be done. His condition was so severe that no doctor would touch it, and even attempting to would most likely leave him in a perpetual vegetative state if not killing him instantly. Mine is not nearly such a big deal. Denial says it’s not a big deal at all!

The day of my initial test, I made a comment that came across as hurtful to one of my children, but I didn’t mean it to be that way. It was an honest statement. I said “I almost hope I do have what Nolan had that way I won’t have to worry about living another 60 years without him.” In hindsight, that was a horrible thing to say. But it was true that day.

The old cliche is true. Be careful, my Friends, of what you say and what you wish for. You just might get it.