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Losing Weight

Losing Weight.jpgGrief is heavy. You carry that weight in your body, in your heart, and in your Soul. Some people are lucky enough to experience what I call the “Death Diet.” These lucky bastards are heavy emotionally, and yet they lose so much physical weight they become unrecognizable. Not so much for me. I’ve wrapped myself in comfort food. I’ve eaten my emotions. This sucks. It’s another facet of Grief that changes you. There’s no quick-fix, miracle diet that can help. The heaviness weighs more than pounds, more than tons. Sometimes you don’t even realize how much you are carrying until, one day, it begins to lift.

I know I’ve talked about the physical experience of Grief. I capitalize it because, really, Grief is an entity. It’s more than an emotion. Grief has substance and presence. It has characteristics and influence. When Grief first shows up in your life, it brings its close friend Denial. They work together to make their way into your body a little at a time. Grief is too strong to manage without the numbing influence of Denial. Occasionally their cousin PTSD sneaks into the mix unseen and hides. He’s an asshole. Grief changes every cell of your body. During my first year Since, I would forget people’s names. Even people I had known for years – even people in my family! I couldn’t hold a thought in my head, and I constantly forgot words I meant to use. I could hold a conversation with someone and shortly thereafter have no memory of what we talked about. There was a point where I really did think I had early Alzheimer’s or Dementia. It turns out that “Grief Brain” is a real thing. Seriously. MRI’s show that a person experiencing profound Grief has changes in their brain function. It used to drive Nason crazy having to repeat himself all the time. Thankfully, he’s a pretty awesome kid, and when we explained what Grief Brain is, he accepted that Mom and Dad were just going to be clueless for a while.

Eventually, Denial makes way for Reality to come in. Reality can be a jerk. It hurts. It takes the blinders off and lifts that numbing fog that surrounds you. Reality has a sidekick named Anger. Luckily for me (and everyone around me) Anger doesn’t mesh with my personality and never really took hold. Reality makes way for Acceptance. Acceptance is the hardest to allow into your life. Acceptance means that you give up the fight against What Is. You give up the hope that this is a nightmare and will end someday. You let go of the dream you had for your child’s life; for your family’s life. You allow for the fact that this is how life is going to be. Here’s the kicker that you don’t expect – It’s going to be ok. It will never be the same. It will never be what you wanted. Sadness will live in every moment of every day forever, and even with all that, life is still going to be amazing.

I knew pretty early on that I couldn’t heal living in the house that Nolan died in. Every morning I awoke in the bed where he spoke his last words. I got showered in the bathroom where he took his last breath. I would pass by the spot where he would lay on the floor and sleep in the afternoon sun. I would see where he stood in the kitchen looking up new recipes. I sat on the couch he slept on for a month. I put pellets in the stove he nearly blew up pouring lighter fluid in. I went up the stairs he slid down in laundry baskets and blankets. I put clothes down a laundry shoot he would climb up and play in. He was everywhere, and yet, he was nowhere. His room was frozen exactly the way he left it. Dust settled on everything because I couldn’t even walk upstairs to go near it.

Ray had a different experience of the house. He found comfort in living in the space that Nolan was so happy in. It was really hard to manage between us. I avoided being there, and he never wanted to leave. At one point, I told him I was moving and hoped that he would come with me, but even if he didn’t, I would be moving out in order to heal. It took some long talks and patience for him to get on board with moving. It took time for Nason to be ok with it as well. We had to promise him, cross our hearts, that we would not leave the neighborhood. We do live in a pretty awesome neighborhood, but houses here don’t come up too often and don’t stay on the market long.

It took a year for us to find a house that would feel like home. It’s tiny. I mean, really tiny. To downsize from 7,000 square feet to about 1,500 (and that might be an overestimate) is an undertaking. It’s been a leap of faith. We didn’t want to miss out on this new home waiting for ours to sell, so we had to just dive in head first. Carrying two mortgages is scary! In theory we could afford it if we budgeted carefully, but Reality seldom works out the way you plan. (If anyone wants to buy our old house, now would be great!)

We’ve been in our new home for a few weeks now. The strangest thing has happened. The air fills my lungs again. The music reaches my ears. Beauty is returning to the world. I didn’t realize how much weight I was carrying with me. I was used to the constant struggle to keep my thoughts from darkness. I was used to gearing myself up to enter those walls every night. Now everything feels different. I look forward to coming home after work. On my days off, I don’t want to go anywhere. I wake up in the morning, and the first thing I say is still “Good morning, Nolan,” but the tears don’t flow right away. When I go to bed, the last thing I say is still, “Good night Buddy. I love you,” but then I rest peacefully. Sometimes losing weight has nothing to do with pounds.

 

 

Bye Felicia

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2 years Since. It’s really hard to believe it’s been that long. This time of year will always be difficult for me. Difficult is an understatement. It’s torture, really. PTSD is on screech. I relive those moments over and over and over again. The waves roll in and pull me under. After it all, however, I’m still standing. I’m not left curled in the fetal position wishing for Death’s cold embrace. I’m standing tall – as tall as my 5’3″ can be – with my feet planted firmly on the ground, looking towards the light that I know will come out of the dark. I feel proud of myself for how far I’ve come in the last 2 years.

I was recently told by someone I care deeply for that Ray and I were “stuck in our grief, filled with negativity,” and they couldn’t be around us anymore. They needed to “move forward with their life,” and that didn’t include us.  I’ll be honest here. My first reaction was “@!#$&*% *%#@%* !@#@$*&^!” <edited to protect your sense of propriety, ok, not really, but I was so mad, even I didn’t like the words coming out of my mouth> I eventually calmed down and sat to reflect on whether their words had any truth to them. I tried to be brutally honest with myself.

I tried to look at where their perception was coming from. Facebook? I do post a lot about Nolan. After being thrust into a parent’s worst nightmare, the next greatest fear you have is losing another child. After that, it’s the fear that people will forget your child. That’s why I post a lot about Nolan on Facebook. He will always be part of my everyday life whether or not he takes a breath! The memories feature on Facebook is a blessing and a curse. I love finding snippets of conversations I forgot about, or pictures I don’t have on my new phone. I love sharing them even when they make me cry. It helps to make sure people will remember my son.

I suppose if you don’t see us on a regular basis, you may not know. You don’t hear the laughter that still reigns in our home. You don’t see how easily I go from tears to laughter. You don’t see how losing Nolan has enriched our relationship with Nason. You may not see how drastically we’ve changed our priorities and our lifestyle to make the changes in our family that Nolan wanted. I suppose if you’ve never been a parent, you couldn’t imagine how this feels. Even as a parent, you can’t imagine.

A by-product of losing Nolan has been my ability to let people go from my life. I used to try to keep everyone close and everyone happy. I used to say “that’s ok” every time someone said or did something hurtful to me. I’ve realized that I don’t need to do that. I can’t fix anyone else’s relationships. I can’t heal anyone else’s heart. I do need to be sure to surround myself with people who bring light into my day. The people who have remained close to me and the people who have become close to me are of a very different substance than those who have walked away. My heart is open to everyone I meet. I am quick with a smile and a compliment. I am finding more of the old me every day. I support each person around me with any struggle they may be having, but I do not encourage those who vibrate with a sense of drama and negativity. I refuse to participate.

It’s not easy to let people go who you have been close to and love dearly. I remain steadfast in my support should they ask for it. My love is unconditional. I am a work in progress, but I am working every day to be better than the day before. I will always have moments and always have days that are impossible. That is part of the life that comes after losing a child. Here’s the thing, though. Life still comes after losing a child. If you can’t get your head out of your ass to see that, then I only have two words for you.

“Bye Felicia.”

Blank Pages

blank pagesRock Bottom is a scary place to be. It’s a dark abyss with seemingly nothing but pain and hopelessness surrounding you. Funny thing about Rock Bottom is that if you search way deep into the darkest depths, you can find a tiny spark hidden in the shadows. This spark is so very small and fragile, and if you’re not vigilant, you might miss it. I’m convinced it’s always there – for everybody.

I’ve been extremely vigilant these last few weeks. I’ve searched high and low in the dark and in the shadows. I’ve found that infant spark. I’m standing careful watch over that spark and encouraging it into a flame. Make no mistake, this is not an easy task. The winds blow hard and fast here in the dark. I need to be watchful; protective.

When I wrote last about 16-yr old Me, I focused on my downfalls. What I forgot – or couldn’t see – was how strong that version of Me is. Yes, she nearly destroyed me, but she also saved me. She saved me all those years ago, and I believe she saved me now too. I am working to acclimate her into my current Self. She’s chaos, but she’s also a lot of fun! More than anything, she is strong. I’m working to take those qualities and hold them close while I navigate these stormy seas. It’s working. I think.

I’ve been at my new job for a couple weeks now, spending a solid 8 hours a day outside my comfort zone. I’m learning about things I never thought I would ever need to know. Geek Speak – it’s a real language, and I’m learning it! (slowly, but still.) Someday I might even understand half of what Ray says! I really enjoy the people I’m spending my day with. It’s an eclectic group which makes for some really interesting discussions and banter. We laugh a lot. Being away from Nason is difficult. It’s an adjustment for both of us, and I think he’s handling it better than I am. The Grief I battle daily is still present, but I don’t have time to face it during the day. My hope of being distracted and busy to get through the hours has turned out well. Unfortunately, I didn’t realize that Grief compounds itself. What I push down all day rears it’s ugly head even harder on the drive home at night. I cry most of the way – all those tears I bottled up during the day. Sometimes a discussion during the day hits me hard, and I feel like I’ve been kicked in the stomach. I can’t run away like I could at school. I have to suck it up and keep trucking. Surprisingly, I’m able to do that.

Night time is harder than ever. The panic attacks are really bad. One night this past week, Ray came home again to find me on the floor, not breathing. He didn’t know how long I’d been there before he walked in. He was able to rouse me, but then I did it again, and again, and again, and again. Five times I stopped breathing that night, and he was getting ready to call 9-1-1 when I finally started to come around. Thankfully, Nason wasn’t home. He suffered through one with me the night before and was still raw from that. The nature of the panic has changed slightly. Twice I’ve had the cessation of breath without the hysterical crying beforehand. I’m not sure if this means things are getting better or worse. It’s a horrible feeling – almost like having the hiccups but instead of that little gasp, my lungs or diaphragm seize up. I’m literally physically unable to draw the air into my lungs. If I can fight past that to catch a breath, my lungs seize again and don’t allow the air out. It’s a terrible feeling, knowing that I’m going to pass out and unable to stop myself. This morning I was able to stop the process on my own, but it wasn’t easy. I should probably do some research about how panic attacks can manifest, but honestly, I’m afraid to find out. What if this means it’s getting worse?

Getting up and going to work after these nights is difficult. But I’m able to do it. I’m starting to feel the ground under my feet again. I’m starting to feel like I can walk again. I’ve taken ownership of my faults, actions, and choices. I am working to not take on the faults of others. I’m working to allow myself to be vulnerable instead of angry. I hate that part the most! I’m working on voicing my feelings and taking care of them myself. God love him, Ray is challenging me greatly in this area. We truly are a Yin-Yang. For years I’ve been his catalyst for growth, and now he is mine. Damn it.

I have come to see that there are nothing but blank pages in front of me. My life is a story in progress, and it’s not over yet. It’s tumultuous. It’s scary. It’s painful. It’s also humorous and filled with love. I get to choose the story I write. I choose to paint these blank pages with color. Every moment of every day is a choice, and I am choosing better. In the words of one of my favorite people,

This is the story of my life
And I write it everyday
I know it isn’t black and white
And it’s anything but gray
I know that no, I’m not alright
But I’ll be OK ’cause
Anything can, everything can happen
That’s the story of my life
Yes, I did just quote Jon Bon Jovi. Deal with it.

NB13: The Nolan Berthelette Story

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I was approached a while back by a young film maker in New York who got wind of our story. Ashley Robinson grew up in Pittsfield, and she lived here until she was 8. Through mutual friends, her Mom, Rachel, found my blog and she began to read and follow my journey. She shared it with Ashely and it touched her deeply. She wanted to share Nolan’s story with the world. That was the humble beginning to an immense project.

Since then, we have met and filmed, shared and talked, cried and laughed. Ashely and Rachel have become part of our family, our Tribe. I feel like Nolan was the puppet master pulling the strings. There are so many parallels in our lives, and an instant kinship was formed. This process hasn’t been easy. Bringing up all of our memories has been hard. Even the happy ones brought us tears.

When we filmed my interview for the documentary, it was the first time I had shared the full story of what happened That Night. I’d given the basics to people who asked, but not many specifics – like the moment Nolan stopped breathing while my hand hand was on his chest; like immediately having to make the choice between the child I knew I couldn’t save and the one standing next to me; like seeing blood pour from his nose in torrents, like seeing the color leach from his body and the grey pallor of death fall over him. I talk about all of this and more in the film. It’s raw and morbid and so painfully honest. Going through all of it was the hardest thing I’ve done Since. But it was healing too, eventually. Bringing up all the details did cause a downward spiral at first. I was sucked into the depths of despair and spent many Grief Days in bed hiding. There was no help for it. Grief is a very physical process, and my body needed to shut down and just concentrate on breathing.

There were times when I sat in my car in the garage just willing myself NOT to turn it on. I tried to filter out the voice that told me I could see Nolan in just a few minutes if only I was brave enough to turn the key. I thought about just not feeling this pain anymore. Then I thought about Nason, Li’l N, (no use in using initials anymore since we’ll all be outed in the film anyway). I thought about him having to hear that I had left him, by my own choice. I was pulled right back into that moment when Ray started CPR on Nolan, and I had to choose between the child I knew just died and the child standing traumatized beside me. It was the same thing. I could go to Nolan, but there’s nothing I could do for him. I had to choose Nason. If he lost me too, I can’t even imagine how he could carry the pain, especially knowing I chose death over life with him.

Eventually I began to come out of it – and stronger than I was before. Laughter came and sometimes it wasn’t even forced. The draw of Death has released it’s iron grip on me. A little. I still think about it, but I know I made it through the worst. The temptation was strong, but I was stronger.  I’m getting there. Nason is my Light.

I am including some links here. If you’re reading my blog, then you are already a brave traveler on this journey with me. I hope you’ll help us spread the word about this documentary. Nolan’s life here has passed, but his work is not done. It’s up to all of us to carry his torch, and be a part of Nolan’s legacy.

YouTube trailer: https://www.youtube.com/watch?v=Pt4vvlQyGdA

The documentary Facebook page: https://www.facebook.com/NB13Doc?fref=ts

IndieGoGo Campaign (help fund the film!): https://www.indiegogo.com/projects/nb13-the-nolan-berthelette-story

The Documentary Website: http://imaginechanges.wix.com/nb13

Whispers in Silence

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Relationships and marriages are hard work. We’ve all been told this, but there are some surprising events that can cause hardship for even the strongest couples. One of those is having a baby (or two or three or four or five). Going from a couple to a family is difficult whether the child is planned or not. Oftentimes the needs of each partner changes in a way that you wouldn’t anticipate. Her enjoying independent time while he goes away every weekend becomes something she resents – that he gets a “break” and she doesn’t. Her lavishing affection on an infant and being too exhausted to show him any becomes something he resents. Although they both love and adore the babe infinitely, the relationship can suffer greatly. All too frequently, people will slowly grow apart and not even notice until something drastic happens. Going from Wife to Mother and Husband to Father is a tremendously stressful time. The shift from a Family of Three to a Family of Four can be even harder. Add to that shifting towards a Family of Five or Six or Seven, well you get the picture. Differences in parenting philosophies often go unnoticed until an issue arises and if not handled well, can put the child in the middle of a lifelong battle. The stress of raising children, maintaining a home, finances, independence, family time, and couple time can destroy even the most committed couples. They are lost to becoming co-parents and roommates.

I’ve been watching this happen to so many of my friends over the last several years. Seemingly perfect families are breaking apart because the intimacy is lost between the couple. I don’t necessarily mean in a physical sense, but certainly in an emotional sense. It’s sad for everyone. I was once told, I think perhaps by my own mother, that you have to put your partner before your children because they will grow up and leave one day and your partner will still be there. It’s sage advice in an age where we worship our children to extremes. It’s also incredibly hard to do when most nights you want to smother your partner in their sleep.

You know what else is potentially disastrous to a couple? Losing a child. Today’s average rate of divorce is already at 40%-50%. Studies have shown that the divorce rate for bereaved parents is more than 8 times higher than the average. The needs of each bereaved parent is as diverse as the needs of each new parent. Men and women grieve differently. The primary caretaker grieves differently than the breadwinner, regardless of gender. While each parent grieves the same child, their relationship with that child has been very different. Their hopes and dreams, their experiences, their memories – they are all so intimate. One parent (generally fathers) may feel the need to move at warp speed. They can’t sit still because when they do, the grief rears up and overwhelms them. The other parent (generally mothers) might not be able to move at all. You may find them in bed for days / weeks / months on end, unable to stop crying. They may see the other parent’s movement as a sign that they aren’t grieving as deeply and didn’t love the child as much. The warp-speed parent might see the frozen one as stuck in grief, weak, broken. They can easily turn away from each other. Many times they simply don’t see the other parent at all.

Grief is lonely. You’re fighting so hard to keep breathing that you can’t see what’s in front of you. It’s easier to stop talking and looking to each other for support. I admit, I’m guilty of this. Too many times my tears went ignored (in my perception), that I began to hide them. I began to resent what I saw as his lack of compassion. In reality, I think my tears are simply too painful for my DH to contend with. His role has always been to protect our family, to keep us safe. He couldn’t save our son. Nolan died, literally, in his Father’s hands. He can’t protect me from this, and his own grief is so deep that often he can’t see past that. Of course, I’m making some assumptions here since I haven’t spoken to him about this. It’s my fault I’ve stopped reaching out. I can see where he tries. The brief hand on the back, the quiet given when I try to cry silently. Those are measures of comfort offered.

Yesterday we saw Nolan’s headstone for the first time. No words have been engraved yet, just his pictures on the stone. I fought tears all day at school, knowing what I would see. DH was trying to talk with me in the car since he doesn’t get my attention at all, and we do have some minutiae that needs dealing with. I’ve gotten pretty adept at silent tears, and when he noticed them, he simply stopped talking. My first reaction was that he was ignoring them and felt resentment, but then a whisper blew into my heart. Maybe it was Nolan, because he was always trying to explain his Dad to me. Nolan was, and I believe still is, the best parts of both of us. His mind was like his Dad, but his heart was all me. He understood both of us completely. The whisper helped me to see that my tears weren’t being ignored. DH was silently holding space with me while the pain gripped me tightly. The softest touch of his hand against mine brought me deep comfort. It told me he knew, he understood that there was nothing he could say or do, it told me he was there.

I think it’s important for grieving parents to hear those whispers. You aren’t going to be able to comfort each other the way each would want. You are completely broken. Anger and resentment are so much easier to feel than the loneliness of grief. It’s so easy to push each other away when you really need to hold each other closely. I’m sure I’ve failed miserably at offering the comfort my DH needs as well. We are on the same Journey, grieving the same child, but it’s an individual path. It’s such a dark place that it’s nearly impossible to notice the person walking next to you. Sometimes holding that quiet place while tears fall is the greatest comfort you can offer. Love isn’t enough to get a couple through grief. You need acceptance of each others’ failings. You need forgiveness because they can’t see beyond their own pain. You need compassion for their broken Soul. You need the whispers that allow strength in silence.

An Unexpected Visit

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A couple of weeks ago, on April 1 actually (no joke), a few of Nolan’s friends came over to work on a school project. I love that they still come around and feel welcome here. They don’t come as often these days, and I try to be okay with that. It’s healthy for them to move forward, and coming here is still painful. Sometimes when they are here, I have to go to bed because the pain of waiting to hear Nolan’s voice among theirs is just too much. Even on those days, it’s still a comfort to have them. It’s a piece of what my life should be like. I know they carry Nolan with them every single day and will for the rest of their lives. But I will admit, I miss them and the chaos they bring!

I had been struggling so very much, as you may recall from my last post. The Dream sent me into a tailspin that I was still stuck in when I got the text “Can we work on a project at your house?” from Nolan’s friends. I was thrilled to have them come. Later in the afternoon, I found myself standing in the kitchen making dinner, one of Nolan’s favorites, and listening to them work on the project downstairs. It was a movie they had to film, filled with antics and laughter. I looked out the window and saw them in bathing suits in the snow. I heard them splash in the pool and scream because we haven’t heated the pool in months. I laughed out loud and it felt wonderful. About that time, I tuned in to my thoughts, as I’ve trained myself to do quite often. If I don’t stay vigilant and allow my mind to wander, I end up in the midst of That Night with a panic attack on the horizon. So, I tuned into my thoughts and realized I was singing Sgt Pepper in my head repeatedly. Not the whole song, only the part that goes “It’s wonderful to be here. It’s certainly a thrill. You’re such a lovely audience, We’d like to take you home with us. We’d love to take you home.”

If there’s one major defining musical connection for Nolan, it’s his love of the Beatles. He found them around 8 years old and is the biggest Beatles fan I’ve seen. His prize possession is one of their original albums which once belonged to his Great Aunt. We found it going through boxes at his Great Grandmother’s house one day and his reaction was like every single holiday and birthday wrapped up with a bow and snacks. (He also LOVES snacks!) I’d never seen a kid react like that before. It was the Holy Grail of his young life. Nolan never outgrew his love for the Beatles. He had about 10 shirts with them on the front. Each time he outgrew one, it had to be immediately replaced. Projects for music class were always about the Beatles. A Hard Day’s Night was watched hundreds of times. He has books about them and at one point was convinced that it was all a big Conspiracy Theory and John Lennon was still alive somewhere. Arguments ensued over this for weeks. When he was 11, I took Nolan to see a Beatles tribute band and he was enthralled. I’m so glad I was able to share this with him. 249876_10150207282089640_597041_nAnyway, whenever I hear The Beatles, I know Nolan is nearby.

So there I was, standing in the kitchen making one of Nolan’s favorite meals, listening to his friends downstairs, and singing Beatles in my head. My next thought was “I’d really like a cup of tea.” Annnnnd my Keurig turned on. I was about 5 feet away at the time. In that instant, as it all came together in my head, I had the most peaceful feeling come over me. I knew, I knew that Nolan was right there. I felt him wholly and truly for the first time Since. In that moment, I was living the life I should have been living. It was a rare, precious gift, that moment. My worlds converged in that perfect space and time. Nolan wasn’t here, but he was here. I said “Oh hey Buddy,” just like I used to when he walked into a room. I felt him next to me. I almost expected to have to tell him to stay out of the kitchen because he always stole little tidbits of dinner when I was cooking. Then I said, “Oh Nolan, I’m so glad you’re here. I’ve missed you so very very much. I love you Buddy.” Tears fall as I relive this here with you, but in the moment, I was still surrounded by that incredible peace and love. I didn’t cry. I smiled. My heart lifted. Then the immediacy was gone and I knew he had pulled back. It didn’t feel like he was gone, though. It felt like he had gone downstairs with his friends. I didn’t mention it to them, but I wonder if they felt him that day too.

I’ve been getting stronger since Nolan’s visit. The feeling that he’s just in the next room prevails. I’ve seen signs of him everywhere. I’ve found coins after talking about him, walked into the band room at school and saw this: 11053353_10153258750474640_3241641477902725350_n

All the percussionists sign a pillow in the base drum at the end of their 8th grade year, and that’s Nolan’s signature sticking out. Coincidence? I don’t think so.

His visit has given me a strength I didn’t know I possessed. It gave me the strength to do this:  1229141019   0416151849(1)

This was a pretty significant endeavor, if you’ll remember. I started months ago with Project Extract Head from Ass and put away what had become a shrine to Nolan’s passing. It was one of the hardest things I’ve had to do Since, right up there with picking out a casket and pulling up the blood-stained carpet. I feel such a tremendous relief that it’s no longer looming over me. Know what else I did? This: 0417150828

That’s my office as I write this blog. It used to be a mountain of papers I couldn’t face. You couldn’t even seen my monitor past everything I’ve been avoiding. I feel like I have made tremendous gains the past couple of weeks. I still have to watch my thoughts carefully. I still cry every single day. I still can’t look at a picture of Nolan for too long. I still stay away from the thoughts that he died. I’m still fighting off panic attacks quite often, but I’m also getting stronger. I’m starting to feel the moments between my breath every so often. I’m starting to see shades of gray rather than black.

A friend of mine who has been in this awful club longer than I, whose child was a friend of my daughter’s in school and was tragically taken from this world at 16, is probably the most inspiring person I’ve met. She posted on her Facebook one day,

“What a beautiful morning. I am actually sitting on the deck in the warm sunshine, coffee in hand, thinking about life. Days like today, I remind myself how beautiful the earth really is and that we and the earth have all been created by the universe. My daughter is part of that universe now. I can not take all this for granted because of that. I will continue to sit here and listen to all the sounds of spring and be thankful we have all been given the chance to be here.”

Her strength amazes me. I’m not there yet, not even close, but I aspire to see the world again; to really see the world and find the beauty around me.

This Journey is the biggest, most monumental test of Faith I could imagine. I find my Faith holding on, sometimes by a thread, but still there. I believe with my whole Being that I am more than my body and so is my son. He has to exist in some form, somewhere. And if that’s true, then where else would he be than right beside me when I need him? He continues to be my Soulmate.

Nolan’s Hands

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Recently, I went to pick up Nolan after he spent the night at a friend’s house. I remember pulling into the driveway of this house I had never been to before and being so desperately excited to see him. I could not wait for him to come out of the front door. I missed him with a ridiculous intensity that made no sense. He’d only been gone one night, for Heaven’s sake! When he finally came outside, I nearly shrieked. Ok, maybe I did a little bit. He walked casually to the car with that lovable smirk on his face. He was wearing his favorite plaid shirt with the sleeves rolled partway, and a pair of jeans. I remember looking at him and thinking what a stunningly handsome man he was growing into. He got to the passenger side of the car and slid in next to me. He looked at me and grinned. I said to him, “Nolan, I missed you! I had the most horrible nightmare that you died!” I held his hand up to my cheek and kissed it. I remember the feel of his warm hand against my face. When I looked at his hand in mine, I got confused for a minute. He didn’t say anything to me, just smiled a soft little smile, like he knew that I was going to fall but he couldn’t help me. He couldn’t save me from it, but he was loving me through it.  All of a sudden it came back to me. THIS was the dream. My life was the nightmare. I woke up in a sea of tears that I still can’t seem to stop.

I’ve always loved Nolan’s hands. From the moment he was born, I’ve had this bizarre fascination with them. The way he would hold onto just my one finger when he was an infant, the way he studied them himself as a baby, the way he learned to use them as a toddler all left me in awe. When he started building things and drawing, I would sit for hours with him and watch his hands. I always thought they were the most beautiful hands I had ever seen. As he got older and they started to become the hands of a man, I would still look at them and think about them holding his own child someday. I would think about those hands touching the face of his wife someday. No matter how old he got, Nolan would always let me hold his hands.

When I first was able to hold Nolan’s hand in the local hospital That Night, I knew he was gone, but in my deep shock, I thought there was a chance he’d wake up. I kept telling myself that when he was life-flighted to the next hospital, we would get there and find him awake in bed. There was no other vision I let take hold. When we got there and I held his hand again, I knew. I was still insistent that the doctors made a huge mistake and he would be fine. I remember thinking the neurologist couldn’t be taken seriously. I mean, he had a Minion shirt on! How could I believe this man when he said my son was not going to recover, that he had already passed away, while he was wearing a shirt with a MINION on it?? It had to be a horrible joke. His heart was still beating. How could he have already died?

It wasn’t until Nolan was settled into his room in the ICU and I crawled into bed with him that it hit me. When I had to physically lift his head to put my arm under it, and I had to physically manipulate his fingers to lace into mine, the reality broke through the cloud that he was, in fact, already deceased. As people came in to say goodbye, I talked to them as if Nolan wasn’t already….well….deceased. I didn’t want the kids to think of that while they said their good-byes. His heart was beating steadily, his body was warm. I know he was in the room, but he was not in his body or in that bed with me.

I spent the next two days staring at his hands. I saw the signs of death slowly taking over his body. A grayish substance began leaking from his nose and mouth. I would lovingly wash it away and apply chapstick to his lips. His coloring began to change. The scent of his body began to have a subtle tinge to it that I will always smell in my mind. His hands began to get smaller, thinner. I couldn’t lie to myself when I was witness to these changes all while his head lay on my shoulder and our hands linked together. Our bodies were pressed so closely, our legs entwined as if he had just fallen asleep with me as he had countless times before.

I remember seeing Nolan in his casket and thinking his hands were wrong. They were thin! His fingers were always so strong and his hands slightly wide. They had lost that and his skin clung to his bones in such an alarming way. They were freezing! I held his hands so long, the warmth from mine leached into his and they became warm again. For as long as I live, I will feel those icy cold fingers in mine.

I don’t think I have the words adequate to describe the feeling of waking from what you thought was a nightmare to find the actual nightmare is your life. I’ve been exceptionally fragile since The Dream. I’ve had to go into the bathroom at work to cry a number of times. I have a hard time being around the kids right now.  Controlling my thoughts is exceedingly difficult. Leaving work one afternoon, I had to stop as an ambulance went by. Hearing the sound in the distance getting closer immediately threw me back to That Night and waiting outside, screaming for help, and finally hearing the sounds of the ambulance in the distance. I wasn’t in my car anymore. I was trapped in That Night all over again. I’m not sure how long I sat there after the ambulance went by reliving that horrible night. Eventually, another car came up behind me and beeped. I’ve said it before, PTSD is no joke. You really are back in time while your body simply holds space for you to return.

I went to a fundraiser for the football team knowing that I really wasn’t strong enough to handle it. It was important to DH, so I went with him. It was alright at first. I struggled but was able to make eye contact with people and even have a few short conversations. They played a video recap of the season that I had seen before and was forewarned would be played again. I knew it would be heartbreaking and that I shouldn’t stay to watch it, but knowing I would catch just a couple glimpses of Nolan on the screen made it impossible for me to walk away. Thankfully, as soon as it began, my Warrior Women surrounded me. I cried through it, ruining my makeup that I had carefully applied to mask my suffering. I sat there falling down the rabbit hole while 3 sets of hands literally held me up. It was a powerful moment. After the video ended, I ran from the room. I had a few minutes of breakdown and then I scolded myself to get it together. I think I fooled those Warriors. I went back to the function room and frantically searched my bag for my anxiety pills. I hardly take them but always carry them just in case. Well, except for that night, I carry them. I didn’t have them with me so instead of leaving, I decided to self-medicate. I know enough addicts to be well aware of what a bad choice this is, but in the moment, I needed the pain to end. I’m becoming very skilled at fooling people. To all outward appearances, I was laughing and dancing and acting silly and seemed to be having a good time. I wasn’t. I was dying inside but wasn’t strong enough to get myself the help I really needed. I continue to work on this.

I was successful in self-medicating to the point of complete blackout. I’m not proud of it, but I’m honest about it. I’m human and I am trying to figure out how to stay alive in a world without Nolan. Luckily enough for me, I have no recollection of the latter part of the evening. I know many teenagers are reading this, and I’ve hedged about sharing this part of my struggle, but I’ve sworn to myself to be brutally honest. Kids, this is a bad idea. It ends up being harder in the long run. You can’t escape the pain this way. In fact, it makes it a thousand times worse.

The floodgates are open and I can’t seem to close them. I’m still extremely fragile. I’m walking on very thin ice that could swallow me whole at any moment. I’m having a lot of flashbacks during the day. I don’t get much sleep at night. I gave up caffeine a week ago and have no idea why. Seriously. No idea. It might appear that The Dream set off a downward spiral and hurt more than it helped. While the downward spiral part is true, I believe The Dream is helping. It is making me face some areas that I need to really work harder to control. I pray a lot. I am watching myself more closely. I am committed to making choices that will help me become stronger each and every day. I don’t understand about the caffeine, but for some reason, I feel guided to do so. I’m following my intuition. I’m trying so much harder to trust the process. I’m trying to trust that Nolan really is loving me through this.

Last night after obedience classes with Ellie, I met the daughter of the breeder who gifted us with Ellie. We talked for a bit about Nolan and how Ellie has been such a blessing to our family. I’m thinking of having her licensed as a therapy dog since she seems to be able to tell when both Lucy (our epileptic rabbit. I know. Only in my family!) is going to have a seizure, and when I am brewing a panic attack. When I left, walking across the dark, muddy parking lot, I found a coin. I know it was from Nolan, acknowledging that he had heard all I said and was loving me through everything. I trust that is true.

While The Dream did send me on a spiral, holding Nolan’s hand again, even for a such a brief moment, is worth any Hell I have to walk through afterwards. He challenged me in life, and he continues to challenge me in death. Being Nolan’s mom is an adventure that never ends.

Nolan’s Final Essay

custom-essay-writing

Today I decided to move mountains. Literally. My desk is a huge mountain of papers that I do my best to avoid. I took a big step about 2 months ago and bought a new desk calendar. You may remember from a previous entry that I haven’t been able to change the calendar on my desk from the July 2014 one. I’m still working on the aptly named “Extract Head from Ass” project of cleaning off my desk and dining room table. I was making headway until I bought that stupid new calendar. I put it on my desk, on top of that mountain, and proceeded to avoid it like the plague. Shortly thereafter, DH informs me that another letter came in from one of Nolan’s donor recipients and he put it on my desk. That pretty much made my entire office off-limits. I couldn’t even look at it when I walked by. I even avoided blogging with regularity because I knew that letter lurked underneath the mountain somewhere, just waiting to rip my world apart again.

I lived through Nolan’s birthday last week, which I’m still not strong enough to blog about. I will because it was a major hurdle to overcome and deserves to be shared. I was also able, with the help of one of my Warrior Women, to remove the blood-stained carpet in my bathroom. I have been working hard at this Grief thing. I will blog about that too, but not today. Today I need to share what I uncovered mid-level of the mountain. Yes, I did change the calendar, although I couldn’t throw the other one away. I packed it up in the bin with all of Nolan’s funeral “stuff.” Yes, I did read the letter from the donor family and it made me cry those ugly sobbing tears. I’m getting closer to the point of writing to all of the recipients. Soon, I think. I found a letter a neighborhood child wrote about The Worst Day of his Life, which was all about his experience of Nolan’s funeral. That also made me cry those ugly sobbing tears. None of those things compared to finding Nolan’s final essay. This may be a long post today, so feel free to go grab a drink and settle in. You might be here a little while.

Nolan has always been very academically  motivated. When we moved to Maine, Nolan was in 1st grade and already hitting the required benchmarks for end of 2nd grade and some 3rd grade goals. He was never one to be satisfied with “good enough,” and was his own biggest motivator. Once – just ONCE, he got a B+ in a class and immediately emailed his teacher asking what he needed to do to improve his grade. When he took his Algebra final at the end of 8th grade, it wasn’t enough for him to know that he passed. He hounded his teacher for 3 weeks during summer vacation and finally cornered the poor woman in Walmart adamantly requesting to know his final score. It was a 92, to which he responded with “What?? I could have done better than that!”

Going into his Freshman year, Nolan was placed in Honors English. Part of the placement in this class required reading a 500 page book on mythology and writing an essay about what makes a hero. This was due via actual mail to the teacher by July 15. Nolan took this essay very seriously. He scheduled out time for reading and writing and editing. He knew this would be his teacher’s first impression of him both as a person and as a student. He mailed the final essay to her on July 11, a mere 7 days before he passed. I knew he would want to know what he received as a grade on this paper, so I emailed his teacher about this on August 27. It took a bit to finally get a response from her, but she did tell me she had his paper in the exact condition she had received it. (Not even opened???? I couldn’t believe it.) I asked if she would please read his essay and grade it, to which she said she couldn’t. I asked if she didn’t feel that she could grade it unbiasedly, then could she at least read it since it was so important to Nolan? My answer came by way of a third party knocking at my door and holding the unopened envelope with Nolan’s essay inside and a little yellow post-it note saying that she didn’t feel right about opening this package and to please understand.

I tried to understand. Honestly I did. I hadn’t felt anything but love and support from our entire community until that moment. I didn’t understand. I was angry and felt that Nolan had been disrespected. I emailed her in response telling her just that. I tried to make her understand how much of himself Nolan put into this essay and how much it meant to him to make a good impression on her as a person and a student. I expressed to her how much energy and time he dedicated to this project at HER request, and the fact that she couldn’t offer him the simplest respect by at least reading his work was offensive to me. The scribbling on the post-it note told me she was probably very immature. She could have called and spoken with me like an adult and not sent the package with a messenger. I included in my email a copy of Nolan’s final essay in hopes that someday she will be mindful that she is an Educator first and foremost, and her students deserve the respect of her, at the very least, reading the work she assigns. I still have strong feelings about this and am hopeful Li’l N is never in her class.

I was heartbroken and unsure what to do. I knew it was important for Nolan’s paper to be read and graded. I went to his middle school principal, who is a wonderful woman and incredibly supportive, and asked her if she would read and grade Nolan’s paper. She was strong enough to take on the task. She knew Nolan very well and knew how important this was. Having also lost a son as a teenager, she is intimately aware of what I am going through. After reading Nolan’s paper, she said she was unable to grade it unbiasedly. I totally understood that. It was important for us to have an honest grade. If he earned a B+, then that’s what we needed to know! The last thing Nolan would want is a pity A. The principal passed his paper along to one of the Literacy Specialists who, along with an 8th grade ELA teacher read and graded his paper. It was returned to me weeks ago and went in the mountain of papers I was too scared to see.

Today I read Nolan’s essay again and the letter that the Literacy Specialist sent along with his grade. Yes, he did earn an A.  It made me cry those deep, uncontrollable sobs. They weren’t all sobs of sorrow. In amongst the angst, there were tears of pride. I am so very proud of the young man Nolan became. I hope he wouldn’t be too embarrassed, but I think you should all take a minute and read his essay. As the LS said in her letter, “While reading his conclusions about what makes a hero a hero and the words he used to describe their defining qualities, I couldn’t help but think that many people would attribute those very words and traits to him; ‘courage,’ ‘bravery,’ ‘determination,’ ‘humble,’ and ‘compassionate.” Please take a minute and read Nolan’s thoughts on what really makes a Hero.

                As children, we are taught that heroes are people with a unique superpower and whether they are strong, invisible, or can fly, they all wear a unique costume that keeps them hidden from their true identity. Between comic books and movies such as Superman, the media has continued to portray the sincere meaning of a hero. I also believe that the fascinating myths of Ancient Greece have created a misinterpretation of what truly makes a hero.

Perseus, a story well-known throughout many parts of the world is a myth that originated in Greece. This myth explains the journey that the hero experienced. He encountered numerous beasts, but the most dispiteous of all was Medusa. Medusa had the ability to turn man into stone, but Perseus had the courage to slay the monster and bring the head back to the King where he ends up turning him and all his men into stone because of their cruelness. After reading this myth, many people believe that Perseus is a hero because of the heroic journey he took and the horrific beast he slayed, but it’s not his actions that made him a hero, it’s his characteristics. A journey like so would take someone with extreme courage, bravery, and determination, all of which are characteristics that compose a hero.

Theseus is another famous myth that I believe displays the behavior of a true hero. In the story of Theseus, the young man travels a troublesome path to reunite with his father. Along the way, Theseus killed any creature in his path which created a safer path for future travelers. After meeting his father, Theseus volunteered to be a victim that would soon be placed inside the Labyrinth. Whether it be movies or board games, the Labyrinth has always been described as a near impossible maze with consequences that were often fatal. Theseus’ task was to kill the Minotaur, a beast that lives inside the Labyrinth, and then find his way out and being the hero of this story; he was able to do so. When the hero returned home, he had found that his father, the King, had died and he was left to be the King of Athens. As King, he then created a community that was governed by the people. One may think that Theseus is a hero because of the quest he took, but again, it was not his actions that made him a hero, it was his characteristics that allowed him to fulfill these tasks. Theseus was a brave, noble, and humble man and without those characteristics, Theseus would have been unable to complete his journey.

The last myth that I will describe is the story of Hercules. Hercules is a Greek character widely known, but many people refuse to call him a hero. One may not recognize him as a hero because he has been explained as a very unintelligent individual. Along with his stupidity, he has an awful anger problem that causes him to use his immense strength to kill the innocent and in the myth, Hercules kills his sons and wife during one of his temper tantrums. Once Hercules had realized what he had done, he sought forgiveness and to sacrifice his own life in order to save theirs. Although he was a violent man that often killed innocent people, I still believe that he is a hero. Hercules is a true hero because of his tremendous heart that had a “desire to make amends no matter what cost” and similar to Perseus and Theseus, he was brave, determined, and compassionate which are all components that construct a hero.

                Something many people don’t see is the similarities between the heroes in Ancient Greece and the heroes of the twenty-first century. I believe that a true hero is not a person that slays monsters and partakes in strenuous journeys, rather they are people that are brave, noble, humble, courageous, compassionate, determined, and simply want to do only what is right for the betterment of others rather than himself expecting nothing in return.. They’re people that act when there is a need even when they’re afraid, and they are certainly not bystanders. Rosa Parks, Mahatma Gandhi, and John Lennon are all people that I believe are heroes. They aren’t necessarily heroes for just their actions, but for their characteristics that allowed them to complete these actions. These modern day heroes stood up for what they believed in and helped others without concern of themselves all in a peaceful manner. Being a hero doesn’t take a person that is superior to others or someone with an abnormal power, all it takes is an average human looking to do what is right for others. As a society, we have masked the meaning of a true hero by suggesting that they are immortals that slay monsters and soar through the skies in search for evil, while the true heroes have been in front of us our entire lives. People need to begin to appreciate the modern day heroes, but in order for people to do so, it will take someone that will act for the betterment of others without concern of themselves. It will take a hero.

Nolan Berthelette

The 7 Types of People You Meet

The People You Meet

Grief is a journey with no familiar destination. It will last, to varying degrees, for the rest of your life. Grief takes you to extremely dark places that nobody would ever purposely visit. It is a twisting, winding road with hills and valleys. You can never see clearly. There are tar pits that entrap you for days on end. There are pools that drown you time and time again. Just when you think you’ve reached solid ground, the very Earth shifts beneath you and you tumble down to the depths of Hell all over again. The scenery is desolate and cold. The very air is laced with despair. There are fellow Travelers you meet along this Journey. Grief is different for every person and every loss. The loss of a child is a horse of a different color altogether. When you meet one of these fellow Travelers, an immediate and everlasting bond forms. You look into each others’ eyes and find such a deep knowing. These fellow Travelers, by their very existence, give you hope that you too will be able to keep going.

Grief brings out the very best and the very worst in those around us. There are 7 types of people that I’ve met along my Journey. Sometimes it’s surprising who they turn out to be.

1. The First Responders These are the people who show up at the moment of trauma. These are the ones that drive 4 or 5 hours in the middle of the night or hop the next plane to get to you. These are the people that literally hold you up when you hear the news that your child won’t be coming home. These are the people that bring their children to the hospital in the wee hours of the morning to be sure there is a chance to say “Goodbye.” These are the people that hold vigil in the hospital for as long as you are there. You may not even notice them because you are in shock and can’t see beyond the child laying in bed, but they are there. They try to feed you when you can’t feed yourself. They protect your modesty when you pass out on the floor. They sit outside the door and keep everyone away so you can have private time with your baby. These people are strong for you in the midst of the immediate crisis.

2. The Runners These people show up with the First Responders and have the best of intentions of being there for you – for enduring this agony with you. They mean well, but they can’t handle it. These people slip away without a word, unnoticed, wrapped in their own feelings. I try to not hold judgement on the Runners. We are all doing the best we can in any moment. At least, I hope so. Grief and trauma affect us all differently. Some people are just incapable of being a part of the nightmare.

3. The Busy Bees These are the kind-hearted folks that come out of the woodwork and surround you with love. These people move right into your house and take care of everything you can’t think of. These are the people that show up with food for weeks on end. They show up with tables and tents and hundreds of chairs and set them in your yard only to disappear before you can say thank you. They cater the gathering after the Funeral. These people think to do things like make memory books of your child. They do your yard work. They hold candle vigils, fundraisers, and start websites to help. They take pictures and video in case you ever want to look back. They know you aren’t really present in your body and want to make sure you always have something to return to you when you are ready. They go to the mall to buy you orange dresses because they know with your bright, red hair that there simply is no orange in your wardrobe. They know you will want to wear your son’s favorite color. The Busy Bees brave panic attacks of their own to come support you at your child’s wake.

4. The Moths These people tell themselves that they mean well. They are inexplicably and uncontrollably drawn to the attention surrounding the grieving family. They are drawn by their own desire to feel needed or important. These people insinuate themselves into every situation with an outward appearance of altruism. It can take a little time, but eventually, as the media attention and whatnot fades, so do these people.

5. The Ignorant These guys want you to be the same person you were Before. They expect you to still want to do the same things and don’t know how to relate to the new You. They treat you like nothing happened and quickly end conversations when you inevitably bring up your child. The loss of these people goes practically unnoticed.

6. The Ostriches The Ostriches are close neighbors with The Runners. These people might be there in the crisis but disappear shortly thereafter. You are a walking, talking, flashing, neon billboard of their greatest fear. They need to be able to pretend it could never happen to them, and so they can’t watch it happen to you. Some of these people are just so caught up in their own drama, they simply can’t handle yours. This is okay. It hurts sometimes when you think these people are your lifelong friends, but Grief has a way of clearing unhealthy relationships from your path. Eventually you realize that these aren’t the type of people you want in your life anyway.

7. The Warriors These people might have been friends or strangers or acquaintances Before, but they have Since become a true partner on your Journey. These people are ridiculously brave. These are the people who show up and climb into bed with you without saying a word. They hand you tissues and hold you until you cry yourself unconscious. These are the people who go with you to the funeral home and style your child’s hair. They officiate at the Funeral Service even though it terrifies them. These are the people who keep checking on you even when you don’t answer your phone or ever text back. They know you will when you are ready. These are the people who pick you up off the floor when you walk into their shop and collapse in the ugly-crying sobs. These are the people who take you to painting classes because you need to do something. These are the people who take days off of work to drive you to visit a friend in another state. These are the people who answer the Bat Signal and help you tear up the blood-stained carpet. These are the people who know you will never “get over” it. They know that no matter how much time passes, your child will still be gone, and there is never going to be a day you will be “over” it.

The Angel Warriors have shown me what healthy friendships are. They have taught me that it’s okay to be vulnerable. They have faith in me and for me when I don’t have it myself. They remind me that, although my Journey is solitary, I am not alone. These people are Angels on earth, and I feel truly and deeply blessed to have them in my life.

Little Triumphs

triumphs

If you’ve been keeping up with my Journey, then you know last Tuesday I went back to work. If you missed that post, go ahead and read it now. I’ll wait….

That was a very challenging day. As I said, I went home, put on my baggiest pair of sweats and went to bed. Wednesday morning, I managed to get up and get Li’l N off to school. I got dressed, kind of. Ok, I put back on my sweats from the day before. Don’t judge. I wandered the house for a few hours. I don’t know if it’s a grief-specific behavior or if it’s just something that happens when you’re lost in your life, but I tend to wander. Literally, I go from room to room and do nothing. I might put in a laundry but then I forget all about it. I might pick up something that needs to be put away and then wonder how it got into my hand. My body is moving but my brain is disconnected. It’s like walking in a fog without your glasses on. You can’t see where you are going, everything is distorted, and you are surprised when you end up some place. I don’t know if I’ve done a good job of articulating the feeling. If you’ve ever experienced it, I think you know what I’m getting at. I gave up and went back to bed. I was numb and lost. I alternated between silent tears and sleep. I pulled myself together enough to pick up Li’l N from school. When we got home, I went directly back to bed. He seems to understand my need to isolate and sink into the despair from time to time. It doesn’t appear to bother him too much, but he does check on me every so often and ask if I need anything. He tries to be quieter than usual when I get like that. He truly is a most compassionate young man, and I am so lucky to have him. He so sweetly whispered in my ear “Mom…I need to go to practice. Do you think you can take me?” So I hauled myself out of bed and brought him to practice. I went home and back to bed. Amazingly enough, I was there to pick him up on time too. Annnnd then I went right back to bed. He and DH managed without me well enough, and eventually they both crawled into bed and we all fell asleep.

I think it’s important for me to allow myself to wallow now and again. I call it a Grief Day. When I just can’t face the world, and I tuck myself in my little cocoon and watch the clock. I wait for the minutes to roll into hours and for the day to just pass. I cry. I sleep. I let my mind go down all those awful paths. I experience That Night hundreds of times on Grief Days. I don’t think this would be a good habit for everyone. It works for me, though. I have to surrender completely to the profound sorrow in my Soul. Eventually I come back out of it, and I’m just a little stronger.

Thursday, I was able to get up and shower and actually put on clean clothes. Yay! Little triumphs! I finished the laundry I had forgotten about the day before. I wandered, but a little less than Wednesday. I went to lunch with a dear friend and was able to be there for her for a change. It was a good feeling. I knew I had to work again on Friday, so I tucked myself and my kiddo in bed a little early and prayed for strength.

Sometimes, your prayers do get answered. I woke up Friday feeling…dare I say it?…Good. I felt rested and strong. I felt like I could face the day. This was the school I was most nervous about entering. Nolan’s presence is still everywhere. Many of his friends are still there. I took a few deep breaths and walked in the door. I was met by another staff member and embraced in the most genuine, heartfelt hug. I saw tears of happiness in her eyes that I was back at school. Each kid I passed threw their arms around me. So many dear friends came in to check on me throughout the day. Li’l N came into my room about 4 times to see how it was going. Nolan’s close friends and his most special girl spent a whole period with me. It was really wonderful. I felt like Me again. I felt like I fit. Mostly. There were moments when I remembered Nolan and his friends getting passes to spend study hall with me. There were moments where I saw his shadow going down the stairs. There were moments I could swear I heard his voice down the hall. There were moments of kids’ “I remember when Nolan….” that made me a little weepy inside. I’m so glad to hear those words, though. I can listen to his stories over and over and over again. Yes, it hurts because it’s all I have left, the memories. But it feels good too, because all I have left are the memories, and knowing that so many others are thinking about those times makes me feel like he won’t be forgotten. Every so often I will hear something about him that I didn’t know, and I feel so blessed to get another glimpse of the man my son was becoming.

The tears came, as they do every day, but it was manageable. I have cried every day Since – many times each day. I’m getting used to it. I’m crying right now. It’s becoming incorporated into the flow of my life. Tears come. Sometimes they come with gut-wrenching sobs that tear the very fabric of my Soul and bring me to my knees. Sometimes they come silently as I continue doing whatever it is I’m in the midst of. I don’t know if a day will come when the tears don’t flow. I imagine that noticing I hadn’t cried all day would cause me to cry anyway. I can’t think too far ahead of how this pain will be absorbed into my Being. I can only do the best I can every day. Most days are tremendously arduous. Other days, however, I have these little triumphs that I need to celebrate. It can be as small as getting out of bed, or it can be as momentous as holding myself together for 7 hours IN A ROW. This road is long and full of potholes and obstacles. There is black ice that wipes me out, and windstorms that blow me off track. The footing on this road is treacherous. I can’t walk it alone. So thank you, to each and every one of you that holds my hand, literally and figuratively, and celebrates these little moments with me.