Tag Archives: signs

Little Triumphs

triumphs

If you’ve been keeping up with my Journey, then you know last Tuesday I went back to work. If you missed that post, go ahead and read it now. I’ll wait….

That was a very challenging day. As I said, I went home, put on my baggiest pair of sweats and went to bed. Wednesday morning, I managed to get up and get Li’l N off to school. I got dressed, kind of. Ok, I put back on my sweats from the day before. Don’t judge. I wandered the house for a few hours. I don’t know if it’s a grief-specific behavior or if it’s just something that happens when you’re lost in your life, but I tend to wander. Literally, I go from room to room and do nothing. I might put in a laundry but then I forget all about it. I might pick up something that needs to be put away and then wonder how it got into my hand. My body is moving but my brain is disconnected. It’s like walking in a fog without your glasses on. You can’t see where you are going, everything is distorted, and you are surprised when you end up some place. I don’t know if I’ve done a good job of articulating the feeling. If you’ve ever experienced it, I think you know what I’m getting at. I gave up and went back to bed. I was numb and lost. I alternated between silent tears and sleep. I pulled myself together enough to pick up Li’l N from school. When we got home, I went directly back to bed. He seems to understand my need to isolate and sink into the despair from time to time. It doesn’t appear to bother him too much, but he does check on me every so often and ask if I need anything. He tries to be quieter than usual when I get like that. He truly is a most compassionate young man, and I am so lucky to have him. He so sweetly whispered in my ear “Mom…I need to go to practice. Do you think you can take me?” So I hauled myself out of bed and brought him to practice. I went home and back to bed. Amazingly enough, I was there to pick him up on time too. Annnnd then I went right back to bed. He and DH managed without me well enough, and eventually they both crawled into bed and we all fell asleep.

I think it’s important for me to allow myself to wallow now and again. I call it a Grief Day. When I just can’t face the world, and I tuck myself in my little cocoon and watch the clock. I wait for the minutes to roll into hours and for the day to just pass. I cry. I sleep. I let my mind go down all those awful paths. I experience That Night hundreds of times on Grief Days. I don’t think this would be a good habit for everyone. It works for me, though. I have to surrender completely to the profound sorrow in my Soul. Eventually I come back out of it, and I’m just a little stronger.

Thursday, I was able to get up and shower and actually put on clean clothes. Yay! Little triumphs! I finished the laundry I had forgotten about the day before. I wandered, but a little less than Wednesday. I went to lunch with a dear friend and was able to be there for her for a change. It was a good feeling. I knew I had to work again on Friday, so I tucked myself and my kiddo in bed a little early and prayed for strength.

Sometimes, your prayers do get answered. I woke up Friday feeling…dare I say it?…Good. I felt rested and strong. I felt like I could face the day. This was the school I was most nervous about entering. Nolan’s presence is still everywhere. Many of his friends are still there. I took a few deep breaths and walked in the door. I was met by another staff member and embraced in the most genuine, heartfelt hug. I saw tears of happiness in her eyes that I was back at school. Each kid I passed threw their arms around me. So many dear friends came in to check on me throughout the day. Li’l N came into my room about 4 times to see how it was going. Nolan’s close friends and his most special girl spent a whole period with me. It was really wonderful. I felt like Me again. I felt like I fit. Mostly. There were moments when I remembered Nolan and his friends getting passes to spend study hall with me. There were moments where I saw his shadow going down the stairs. There were moments I could swear I heard his voice down the hall. There were moments of kids’ “I remember when Nolan….” that made me a little weepy inside. I’m so glad to hear those words, though. I can listen to his stories over and over and over again. Yes, it hurts because it’s all I have left, the memories. But it feels good too, because all I have left are the memories, and knowing that so many others are thinking about those times makes me feel like he won’t be forgotten. Every so often I will hear something about him that I didn’t know, and I feel so blessed to get another glimpse of the man my son was becoming.

The tears came, as they do every day, but it was manageable. I have cried every day Since – many times each day. I’m getting used to it. I’m crying right now. It’s becoming incorporated into the flow of my life. Tears come. Sometimes they come with gut-wrenching sobs that tear the very fabric of my Soul and bring me to my knees. Sometimes they come silently as I continue doing whatever it is I’m in the midst of. I don’t know if a day will come when the tears don’t flow. I imagine that noticing I hadn’t cried all day would cause me to cry anyway. I can’t think too far ahead of how this pain will be absorbed into my Being. I can only do the best I can every day. Most days are tremendously arduous. Other days, however, I have these little triumphs that I need to celebrate. It can be as small as getting out of bed, or it can be as momentous as holding myself together for 7 hours IN A ROW. This road is long and full of potholes and obstacles. There is black ice that wipes me out, and windstorms that blow me off track. The footing on this road is treacherous. I can’t walk it alone. So thank you, to each and every one of you that holds my hand, literally and figuratively, and celebrates these little moments with me.

Time Marches On

time

Last night I had to take an anxiety pill for the first time since Thanksgiving. I thought for sure I would need to medicate myself to deal with Christmas. It was hard, but I was “ok.” Last night it just hit me – again. Nolan died! You’d think this would have sunk in by now, but it still comes out of the blue and takes me out at the knees. He died! How is that possible??? When will I wake up from this nightmare? My son died! NOLAN died! How did this happen to HIM? It’s so horrible. Walking into that bathroom day after day and night after night, where he took his last breath, is a mighty slap in the face every time. Sometimes I absorb the blow better than others. Last night it knocked me out.

This morning I woke up with a migraine – the kind of migraine that makes you nauseous, dizzy, achy. The kind of migraine that makes the light hurt and your skin supersensitive. Usually my first step is coffee and motrin. This morning I couldn’t force myself out of bed. I lay there waiting for DH and Li’l N to get up. Thankfully they did, and the quiet solitude allowed my mind to just drift. I didn’t want to take the pain away. I lay there waiting, praying, for that loud “pop” in my head that I’ve read about. I prayed for the pain Nolan described in his last precious minutes on this earth. I prayed for the dimming of the world around me. I begged for my heart to just stop beating. I cried out for that little tiny bubble on my artery to let go. Let that blood flood into my brain and blot out everything. Just let it happen. I told myself I wouldn’t call out for help. I wouldn’t try to hold on. I imagined DH coming to find me, thinking I was still sleeping. I imagined my life insurance solving our financial troubles. I called to Nolan to come and take me with him. Please, Nolan…just take me with you… But it didn’t happen. He didn’t come. That stupid little anneurysm stayed intact. I’m held here against my wishes.

My desk calendar still shows July. I haven’t been able to tear that page off. I don’t think I will. I’m packag1231141425-1(1)ing it up with the shrine from the dining room table. I began that process yesterday. You remember, the lovingly dubbed “Extracting Head from Ass” project. It’s actually a lot harder than I thought it would be. That’s probably what started my downward spiral. Each time I put something into the bin, I had to leave to break down. After putting 3 things away, I called it enough for one day. Anyway, this calendar will go into that bin. Eventually.  I can’t let it go. How ridiculous is that? It’s been written all over, doodled on, scribbled on, and yet I can’t throw it away.

Tonight we all change our calendars over. A new year begins tomorrow. A year for fresh starts, new beginnings, a blank page. You know what? I don’t want a new year. I don’t want to live in a year that Nolan doesn’t get to see. The thought of his passing being “last year” devastates me. I didn’t expect this. I won’t exist in the same year as him ever again. His life will be in “years past.” Forever. I don’t want to see the new year. I don’t want to live in a different year from him. But I don’t have a choice. I’ve surrendered already. I’m trying to relax into the abyss and trust the process. I don’t want to. I really don’t want to.

My plan for tonight was to stay home, under the covers, and pretend it’s not happening. We all know Denial is a dear friend of mine. Li’l N, however, has asked that we attend a party. He doesn’t ask that of us often. I’m going to struggle no matter where I am. If I force him to stay home and struggle with me, is that fair to him? If I send him off with DH and stay home alone, is that fair to him? He needs to see me being strong. He knows I hide in the bathroom and cry every night. He always asks to come in, and if I tell him “not right now,” he sits right outside the door and waits for me. He will greet me with a hug and a quiet “Are you ok? Do you need a pill?” He needs to see me being strong. So tonight, I will *probably* go to the party with him. If you see me there, forgive the distance in my eyes. While you rejoice the new year, please forgive my tears. I know I won’t be able to stop them. It’s just part of the journey.

I’ll share these words written in 1990. They are as true today as they were then. Strange how things come full circle.

The leaves fall as the days pass
And the sand falls through the hour glass
The sun shines, no clouds are near
But in my heart I drop a tear
I stand alone every night and day
And deep inside I feel betrayed
All love is lost, my Soul is sad
I dream of happiness I once had
When life was beautiful and everything looked bright
And I was never left feeling alone at night
Now the rain comes and my heart is cold
And forevermore I must stand alone.

Cheese Platter from Hell

cheese platterI’ve been avoiding this – the revisiting of the first dreadful Thanksgiving Since. I anticipated it would be bad. Nothing prepared me for how gut-wrenchingly awful it would actually be. Maybe if I let the words out, I can also let them go. Here goes.

Every year Nolan would go to my sister’s house a couple days early to help her cook. That was a passion and a talent they both shared. It was wonderful to see her connect with my son in that way. Not having any children of her own, I think it gave her a brief glimpse of how amazing it is to see a child blossom under your wing. This year our oldest went to help her Aunt in Nolan’s place. They had fun, and that makes me feel good. Plus this happened. It made me laugh. (Remember to open in new tab!)

We spent the week in MA. DH was working, and I got to visit with some friends. That was good. I was good. I felt stronger. It’s always a little easier on me being away from home. Home hurts too much.

As much as I dreaded The Day, time is relentless and it dawned before me much against my wishes. I awoke in tears.  Li’l N was right there, as always, holding me. He doesn’t say a word. He doesn’t try to tell me it’s ok or make false promises that it will be ok. He simply holds me and lets me cry for as long as I need to. I’m in awe at his ability to instinctively know how to comfort at such a young age. I wonder if I let him comfort me too much sometimes. Then I think, perhaps his comfort and my acceptance is a gift to both of us. He is powerless to change the situation, and as a child I imagine he feels that magnified. Knowing that his care does help, I think maybe that gives him a little bit of empowerment too. Or I could be completely wrong and I’m letting him take on more than I should. I have no idea. But I digress.

The day dawns and eventually I get myself out of bed, dressed, and somewhat composed. We went to watch my nephew’s last football game as a Senior. I know I sat through the game. I must’ve watched it. I didn’t see any of it. My mind, my heart, my Soul was elsewhere. I both wanted the game to end so I could curl into myself privately and I wanted it to last forever because I knew what came next. Again, time is relentless.

I struggled the whole ride to my Sister’s house. I prayed and prayed and prayed for help to stay strong, to face this day with grace, to find some moment of joy amidst the sorrow. Some prayers just aren’t answered. Maybe they are always answered and sometimes the answer is “No.”

I knew I couldn’t let anyone touch me. I was barely hanging on by a fraying thread, quickly unraveling. If anyone touched me, I would lose all semblance of control. I was open and simply said “I’m not hugging today.” My family, at least 99% of them, are wonderful and accepting and supportive. My proclamation was met with a simple, “Ok.” Phew. I thought maybe I could do this. I was wrong.

I walked into the kitchen where we typically gather and was immediately brought to my knees by a cheese platter. A g*d-damned friggin cheese platter. You simply cannot account for what will devastate you. I have nothing against cheese. I like cheese. Nolan, however, LOVED cheese. He used to say “Cheese is my weakness.” He would hover over that platter and inhale its contents with smiles that lit him from within. Ahhh the power of cheese. I looked at that seemingly innocuous platter of dairy and my world spun out of control. It looked like I was in a kaleidoscope. The room tilted on its axis. I felt dizzy and nauseous. The floor opened up beneath me and the black abyss of Grief pulled me under with no warning. It was instantaneous. I was lost before I was even able to register what happened. I tried to hide it. I’m not sure what I said or if I said anything out loud, but I blinked and found myself sitting on a corner of the couch in the living room, alone. I think I did black out for a minute. I didn’t faint, but my mind clicked out. Kind of like a drunken blackout without the benefit of the drunken part. There was a glass of wine next to me, and I still have no recollection of how it got there.

I stayed in that spot, on that couch for a couple hours. I think I might have talked to people, but I’m not sure. I remember being gifted with a beautiful journal by my Sister’s dear friend. It’s leather-bound and embossed with the Tree of Life. Perfect for me, and so touching that it brought my consciousness into my body briefly. I was in a fog, and I don’t remember all of that hideous day. I have glimpses. I have sound clips. Bursts of laughter coming from around that damned cheese platter. It made me angry. Then I felt guilty for feeling angry. Then I felt sad for feeling guilty. At least I kept my mouth shut. I think. I remember sitting there and willing myself out of my body. I felt trapped, caged. I couldn’t get out. I couldn’t get away. I remember my oldest daughter sitting next to me at one point, but I don’t remember if we spoke. I was on auto-pilot and either I was so good that nobody noticed or my family was really good about not mentioning it. Either way or maybe both. I don’t know.

When it was time to gather at the table, I froze. I tried waiting for everyone else to situate themselves first. I had every intention of standing up and walking over. I knew I couldn’t eat, but I thought I would sit there at least. My feet were encased in lead. My legs became numb. My heart raced.  My hands tingled. My head spun wildly. There was no way I could get myself to that table. One minute I was on the couch and then next I was locked in the bathroom upstairs. I don’t remember what happened in betweeen. It’s blank. I sat at my Sister’s vanity and sobbed. I was wracked with painful sobs that tore from the very depths of my Soul. I heard laughter from downstairs. I heard DH’s laughter and it tore me to shreds. He hadn’t offered one bit of comfort all day and it ripped me apart. I knew he was doing what he had to do, even at the time. But still. I felt so terribly isolated and alone.

I don’t know how long I sat there. Eventually my oldest daughter and youngest son came to my rescue. I don’t know if they said anything, although they must have. I felt both of their hands on me and it was a lifeboat tossed into the churning sea of despair. I don’t know if I asked Li’l N to get my pills or if he thought of it on his own. I wish I had thought to take a pill much earlier in the day. I slipped one of those little tablets under my tongue and in a short while I was able to gain a little more control of myself. I knew I had to make my way to the table just because. Somehow I did. I had literally a bite of turkey and a bite of stuffing. I tasted none of it. I think I sat there for minutes before returning to my spot on the couch. Those pills knock me out, and I was so grateful for the darkness that crept over me. I was freezing even though the room was hot. I couldn’t stop shivering. I didn’t fight the pull of sleep. I had been checked out all day even with my eyes open. It felt good to let them close and the heck with anyone around me.

When I awoke some time later, (hours?) I felt better. Not much but a little. I felt hungry, actually. It occurred to me I hadn’t eaten all day. I fixed myself a small plate of leftovers and picked at it. It didn’t taste right to me. I’m sure it was the usual bit of deliciousness, but Grief robs you of your tastebuds. It twists your sense of smell. It dulls all colors in the world. I had to force it down. I think I was able to hold a conversation by this point, but I’m not sure who it was with or what it was about. My sister? Probably, but I don’t honestly remember.

When I next looked at the clock, it was after midnight. I don’t know where the hours went. It really was an odd experience. I’ve never been so in and out of consciousness before. I have clearer memories of the hospital than I do of that Dreadful Day. I must have been in shock or something. I simply could not handle it.

It was after 1am before I laid my body down. I took another pill just in case, which I haven’t done in more than a month. Li’l N snuggled in my arms. I remembered laying in the hospital bed with Nolan, knowing that the time left with him in my arms was dwindling. My Mother swept the hair out of my face and whispered close to my ear “Stay in the moment. Don’t think about what comes next. Right now, in this moment, you have Nolan in your arms.” I held onto that with Li’l N. I stopped allowing myself to think of what was missing. In that moment, deep in the stillness of the night, I had my youngest son, my baby, held safely in my arms. I felt the weight of him on my body. I smelled the soft scent of his cologne and shampoo. I heard the quiet sighs of his peaceful slumber, and I surrendered. I let the day end knowing the next would come and I would wage the battle once again.

Shackles

joan-of-arc-aFor those that haven’t read my post “Naked in Front of the Crowd,” go read it! No, it’s fine. Here are the Cliff Notes. A couple of months ago, I was diagnosed  with a small brain aneurysm.  I’ve had mixed feelings about this from the beginning.  At first, I felt so guilty that Nolan most likely got this from me. Somebody pissed in my gene pool and he paid the ultimate price. It’s obviously ridiculous to feel guilty about that. I carry no more responsibility for his developing an aneurysm than I have responsibility for his getting my ears or my mouth. Genetics are bizarre. So, I got over that. Mostly.

Second stage of coping: I was relieved.  How weird is that? To me, this meant that I wouldn’t have to live another 40+ years without Nolan. There was a back door out of this life! There was a quick escape! It was out of my hands and maybe part of the plan! I was ok with that. I know, I know. My other kids need me and yadda yadda yadda. Hey, Grief is messy, ugly, and doesn’t much care about anyone else. It just is.

Every time I’ve had a migraine since this diagnosis, I did get a little nervous. I immediately began formulating a plan of what to do with Li’l N just in case. I kept the phone near me, just in case. Not the actions of someone who was waiting to die. That showed me that I really didn’t want to leave this world just yet as much as I do want to leave this world right now. Does that makes sense? Don’t feel bad. It doesn’t make sense to me either. Grief is full of strange dichotomies. {shrug}

I met with briefly with Li’l N’s neurosurgeon who was kind enough to take a quick look at my scans. He agreed with the first diagnosis. Considering he’s a pediatric guy, it was suggested I see another neurologist who works with adults. That brings us up to today.

I met with a neurosurgeon who is at the very top of his field. What did he have to say? He was “underwhelmed” with my scans. Wait, what? In this case, he assured me, that is a good thing. While he can see where the original diagnosis came from, he is pretty confident that it’s nothing big enough to require treatment or anything more than repeat scans as the years go by. Great news! Everyone is so happy and relieved. Awesome! Woo Hoo! Right?

Not me. I felt like I had 100lb weights strapped to my feet. I felt like I had a 1,000lb weight sitting on my chest. Relief isn’t the word for what I felt.  I felt stuck. Trapped. Hopeless. Shackled to this life that I no longer want. That was my back door. Now it’s locked. That was my “easy out.” That was my escape. Now what?

It’s taboo to say things like that. We’re not supposed to want to die. When you lose a child, you’re supposed to hold on for your other kids. It’s what everyone tells you. Somehow it’s just expected that you would want to. Let me tell you, that’s not the case. It’s not about how much you love your other children. Lord knows, I love them more than anything else in this world! I’m only breathing today because of them. It’s not about that. It’s not even about love. It’s about loss. Grief is selfish. It blankets everything else completely. Grief doesn’t care that the other kids are hurting too. It can see that, but it can’t touch it. Grief doesn’t care that the other parent is broken too. Grief has eyes and a mind for only one person. The child that isn’t here. Grief cries out for them with a screeching holler that leaves no room for the sound of other children crying. It’s horrible to the other children who will forever be The Other Children.

You may think this makes me a bad mother. Maybe it does. I don’t know. I can’t make any apologies for these feelings. I didn’t ask for them. They came when Nolan left. Experience has shown me that feelings are transient. Hopefully these feelings will be as well. I think they will pass in time because of the deep love I have for The Other Children. In the meantime, I go through the motions. I try to check in with them. I hug them. I tell them I love them and how proud I am of them. I tell them I’m here if they need me. The harsh reality is that I’m not here as I should be or want to be. I’m half out of this world. I’m straddling the abyss. The back door is locked. I have no easy out. I’m stuck. Shackled. Here. While Nolan is There.

 

Angels on the Field

10507019_10152393416675780_8248734576577210507_oDH and I were lucky enough to have dinner before the Big Game with Taylor Darveau’s parents. (See my last post for the backstory.) I will admit I was nervous to meet them. In fact, I said to a friend of mine that I didn’t know what to say to them. Her response as she had a fit of giggles –  “I’m not laughing with you. I’m laughing AT you.”  I know, it felt silly, hypocritical even. We are in the same horrific club. We both lost a child. How many people wouldn’t talk to me because they didn’t know what to say? I’m not immune to the irony.

As it turns out, I had zero reason to be nervous. They are such warm, caring, open, and forgiving people. They traveled a much harsher road than we have and yet conduct themselves with a grace and a determination that speaks volumes for the depth of their love for Taylor. I feel honored and blessed to count them among our Friends. The parallels in our lives and in our childrens’ lives is uncanny. I firmly believe that Nolan and Taylor have their hands in all of this. As much as both families would give anything to have them back, it’s comforting to know that they are together and working hard to surround all of us with their loving guidance.

How did the Big Game go? The Huskies did it, and not alone either. I have no doubt that Nolan was there, and this photo simply proves it.

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The emotions that poured forth upon the win surprised me. It hit me hard and the tears just flowed. Luckily I was surrounded by loving support and they helped me stand. I wasn’t the only one. This has been such an emotional season for all of us. I went onto the field to hug some of Nolan’s best friends on the team and could have held onto them for hours. We cried together in joy and in sorrow. Thinking about it now still brings tears to my eyes. I know Nolan is so very proud.

Nolan has been with his Brothers every step of the way this season. We move on to the State Championship game next Saturday in Portland. Including exhibition games and scrimmages, next Saturday’s will be the Huskies’ 13th game. Do you think that’s a coincidence? Neither do I.

You can catch the recap here (remember to open in new tab!):

http://wabi.tv/2014/11/15/mci-battles-back-best-bucksport-win-class-d-eastern-maine-crown/

Learn more about Taylor Darveau and the T.A.Y.L.O.R. Foundation at:

http://www.taylorfoundation.com/

The Big Game is more than a Game

 

1507760_896734047028178_7975437336775227726_nFootball has always been big here in this little town of Pittsfield, and this season it’s become even bigger. Our Huskies are about to face their Championship Game tomorrow night with an undefeated record behind them. To the Team, to the Community, to all of Us, it’s about more than the game.

Nolan decided to switch from Soccer to Football at the end of his 8th grade year. He had begun weight training with the Huskies and was drawn in by their camaraderie. He knew these boys were more than teammates, more than friends. They were brothers. They were so welcoming and inviting to Nolan. He wasn’t expecting that. He was anticipating the usual antics and hassling towards Freshmen. Those boys were nothing like that. They connected with Nolan and he fit right in from the beginning.

It broke something in all of us when Nolan died before he ever got to play on the field in an actual game. His death also created something. Nolan’s passing tightened the bonds of the Huskies bringing rise to their passion, perseverance, and endurance. Nolan’s passing brought them a mission. Their mission was to play this season for their fallen brother. Their mission was to play harder and fiercer for Nolan and to make Nolan proud. Let me tell you, they have done that and more.

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This story has captured everyone’s attention and touched our Community. Below I’ve put 2 links for a news story covering Nolan and the Huskies this season. Please take a few minutes to watch. It’s very touching.

**open link in new tab so you don’t lose me!**

http://wabi.tv/2014/11/03/nolan-berthelette-still-part-mci-football-program/

http://wabi.tv/2014/11/04/berthelette-continues-inspire-mci-football-part-2/

Are you still with me? The story gets better.  Meet our opponents in this Championship Game. The Bucksport Bucks, and they are no strangers to loss. They lost someone very special to them as well, Taylor Darveau. Taylor was a cheerleader for Bucksport and was killed last year in a Distracted Driving accident. Please take another minute to read more about this amazing connection.

http://pressbox.bangordailynews.com/2014/11/09/home/bucksport-mci-cope-with-tragedy-while-reaching-ltc-final/#.VF_JybbH-FI.facebook

Now we’re down to it. Two teams playing for their fallen mates. You couldn’t make this up. Well, maybe Hollywood could, but you and I couldn’t. It’s an incredible showdown in the making. These kids on both teams are an example of perseverance. They are an example of kinship. They are an example to all of us that there is more than a Game at hand. It doesn’t really matter who wins. Of course we’d love to see the Huskies go all the way. There’s a bigger picture here. All of these kids have lost some of their innocence. They know all too well that bad things happen to good kids. They’ve shown us how to stay strong and keep going. They’ve shown us how to hold each other up when we fall. I usually roll my eyes at the saying, but I’m using it here with all sincerity. No matter who gets the trophies at the end of the night, all these kids have won so much more than a Game.

Shoulda, Woulda, Coulda

carouselI learned today that Nolan’s twitches were, in fact, a symptom of his aneurysm. He had this blinking twitch and this weird moving-his-hairline twitch. That one was pretty strange to see. He could literally move just his hair on his scalp. I’ve never seen anyone be able to do that before. I’d mentioned these behaviors to his Doctor on a number of occasions and was told they were just stress or anxiety responses. Like an idiot, I bought it. Ok, I’ll be kinder to myself. Not an idiot, like an ignorant fool. Try again? Like a passive parent. I can’t help feeling that as his Mother, I should have pursued the issue. I should have known.

Here it comes again. Shoulda, Woulda, Coulda. This is a bad road to go down, but right now it’s the only one I see. I should have seen something more was at play. I should have simply asked for a scan to be sure. I could have been more of an advocate for Nolan’s health. I should have known this deadly condition was lurking. I should have felt the danger! I could have saved him. We could have found out about this in time to maybe do something. I could have saved him if only I’d known. WHY didn’t I know? I’ve given that boy Reiki so many times. How did I not feel something amiss?

Where were my instincts? Where was my intuition? I can tell my kids are lying from the way they hold their bodies. I can tell they’re planning something sketchy by the tone of their voice. I can tell they’re not feeling well by a look in their eyes. How did I miss this? How could Nolan have been so close to death for so long and I didn’t see it? I noticed his twitches increasing in the months leading up to That Night. Why didn’t I pursue it? I believed it was simply stress and/or anxiety. It made sense. Nothing that bad could ever happen to one of my kids.

This is a slippery slope. It’s a carousel that doesn’t stop. People will tell you not to blame yourself, there’s nothing you could have done. People will say it was his Fate or he had something bigger to do. Maybe that’s true. It still spins me around and around and around. If I had just asked for a scan, Nolan might still be here today. He might be playing football this weekend. He might be downstairs right now playing drums. He might be driving me crazy with all of his plans. He might be standing right behind me asking my advice. He might have his hand on my shoulder right now. He might be saying “I love you, Mom” one more time.

I can’t trust myself anymore. I used to consider myself a good Mother. I took pride in being a Steward of these children. I thought I was so tuned in to them on all levels. How did this one get by  me? How could something so major slip my attention? What am I missing now? What if another of my children has something terribly wrong that I don’t see? I have lost faith in my instincts as a Mother, as a Sister, as a Friend, as a Wife. If I missed this, what else am I blind to?

I failed my son. I failed Nolan when he needed me most, and it cost him his life. How do I pick up and keep parenting knowing that? I’m not worthy of these children.

Hugs from Heaven

embrace101

A couple of times now, I have gained consciousness while I was sleeping. Think lucid dreaming, but a little different. I know I’m asleep, or I think I am at the time, yet I can see clearly. I see DH and Li’l N sleeping soundly beside with me. I can see the clock and the time. I can see the light from the pellet stove in the next room. I can see clearly even though my eyes are closed and I don’t have my glasses on. I haven’t been able to see without glasses for 30 years! It’s been an interesting experience, but I hadn’t given it much thought until last night.

Again, the lucid state was upon me. I looked lovingly at the two sharing my bed and then I happened to look into the dark. It was in my mind’s eye, and at the same time it wasn’t. I don’t know if I can describe accurately the experience. Mere words seem inadequate. In the distance, I saw Nolan’s profile forming out of shadows. I felt a flutter in my heart, and I remember “saying” to myself or Nolan or whoever was listening “OH my God, it’s Nolan! Come here! Please come here!” and there he was. Fully formed in front of me, smiling with that twinkle in his eyes that I haven’t seen in 111 days. My heart raced, the adrenaline rushed, and I put my hands on his arms. Nolan was wearing his black Aeropostle sweatshirt that was hanging in my closet. I don’t think I noticed what he was wearing other than that. The thought came to me that every time I think of him, I think of a certain outfit he loves to wear and was surprised to see him choose that sweatshirt. He had his “gutter bangs” which he had stopped wearing recently but was one of his favorite hairstyles. I was able to touch him. I felt his arms, warm and pliant beneath my hands. I said to him “I can’t believe you’re really here!” Then I hugged him. I cannot begin to describe how that felt. He didn’t say anything to me, but he was smiling. He held me as tightly as I did him. God, it felt so good! He was taller than me still and wrapped his arms over mine, holding me to his chest like I used to do when he was smaller than me. I remember not wanting to ever leave his embrace. The waves of emotion began to flood over me and I felt myself being drawn away from him. Inside I screamed with everything I had “Wait! NO!!!!” I couldn’t stop the pull. He stayed still, smiling at me, as I was thrown into wakefulness, back into my body.

I lay in bed now fully awake, still feeling his presence. Was it a dream? It certainly could have been. It felt like more. I don’t know if I was in or out of my body. I feel like I was able to reach a place where we could both meet. My mind kicked in and pulled me back, but I really feel like I was with him for those few precious moments. I want to go back with every ounce of my Soul, I want to go back. I want to be able to spend more time in that Place In-Between; neither Here nor There, but the most special place I have ever been. There was no Otherworld around us. It was just he and I in the dark, but it was the warmest, safest dark I have ever felt.

I pray this is only the beginning of learning how to spend time with him again. Last week was so hard. I was pulled under by the Grief for a solid 5 days. I began to think I needed to be hospitalized. Seriously, it was that bad. This week I’ve been stronger. Is that the key? Each time I come out from under the Grief, I am a fraction stronger for a little while. Is this progress, or am I getting more delusional as the days pass? Honestly, I don’t care if I am. I was with Nolan for a few moments. He was smiling. I felt his arms. We held each other close, and I felt his love. If that’s crazy, then I never want to be sane again.

Chasing Ghosts and Finding Signs

chasing ghosts

I heard the footsteps again last night. This wasn’t the first time, and I’m not the only one that’s heard them. They walk the same path Nolan would take when he was getting ready for bed at night. The steps woke me from a dream where I brought this indescribable, unconditional, pure love to children. I’m not sure what kind of healing I was doing, but as I cradled a young girl to my chest, she said she needed to lay on my necklace. (I have a necklace with a heart-stone that Nolan held all the while he was in the hospital that I wear every day.) When I asked her why, she replied in a whisper “Because it tells all the Secrets.”

That’s when I heard the footsteps. They usually come around 3:30 am. This time I got out of bed and tried to find him. “Are you there, Nolan?” I asked the empty room as the tears silently fell. “Where are you?” I didn’t see him. I wish I had. Is he wandering the house at night? Is he still going through the motions as he did here on Earth? I wish I knew.

I sleep in about 30 minute intervals. My mind is constantly calling out to Nolan. Every dream I have is about him. Usually I’m looking for him or something that I know represents him. Many times I’m trying to move in my dream but being held in place or trying to run and not going anywhere. It doesn’t take much to interpret these dreams. The night before last, I was restlessly searching for Nolan and finally was able to find part of him. I saw his feet. Is this progress? I don’t know. I couldn’t find the rest of him, or I just couldn’t see the rest of him. It’s hard to tell. You know how dreams are.

After searching the house for Nolan, I laid in bed for hours just watching the clock and crying quietly. At some point I fell back to sleep and dreamed that I was at school and a girl came up to me asking where Nolan was and how he was doing. I had to tell her “Oh Honey, Nolan passed away in July.” We both broke down, and I awoke awash in the emotions of that moment once again. There is no respite in sleep.

This morning I was reflecting on many of my dreams and not really listening to the radio playing. I was lost in my head, talking to Nolan, begging him to come back. Something strange happened. It’s not the first time this has happened either. It seemed like the volume turned up or my consciousness tuned in just as I heard:

“Sleep tight, I’m not afraid. The ones that we love are here with me.”

Was this a message from my Boy? A message from myself to myself? I don’t know, but it brought me both pain and comfort. These lyrics speak to me on so many levels. Take a moment to sit and listen with me.

The first time this happened, we were in the car. I was just sitting there, lost in my head, crying out to Nolan and it sounded to me like the radio volume increased just as the lyric rang out:

“You’ll be in my heart. Yes, you’ll be in my heart. From this day on, now and forever more.”

When I listened to the whole song, it rang such a Truth to me. I knew it was Nolan speaking to me through music. Why do I even question it? Music is (was?) such a huge part of him, is it any wonder he would reach out in this way? The signs are there. They comfort and they bring sorrow in equal measure.

I wish I could go back in time. I wish I could jump forward in time to the moment I see him again. All I have is Now. But Now really, really hurts.